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Global join forces to grant online access for adults with down syndrome

30 Dec 2022 11:34am
Image for illustrative purposes only - FILE PIX
Image for illustrative purposes only - FILE PIX
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KUALA LUMPUR - The Global Down Syndrome Foundation (Global) has collaborated with El Centro de la Universidad Católica de Síndrome de Down in Chile (CUSD) and Japan Down Syndrome Association to translate and provide online access to the Global Medical Care Guidelines for Adults with Down Syndrome (Global Adult Guideline).

Published in Spanish and Japanese languages, the Global Adult Guideline is the first evidence-based guideline for adults with Down syndrome and was published in English for the Journal of American Medical Association in 2020.

The authors include the directors of the largest adult Down Syndrome clinics in the United States (US).

Currently, the guideline comprises nine medical topics: behaviour, dementia, diabetes, cardiovascular disease, obesity, osteoporosis, atlantoaxial instability, thyroid disease and celiac disease.

In a statement, Global said it is working on expanding the topics to include sleep apnea, solid tumours, leukaemia, vision/eye care, and physical therapy and fitness.
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In addition to the 80-page guideline for medical professionals, Global has also published a much shorter family-friendly version, and toolkits that include easy-to-follow assessments for Celiac disease, diabetes, behaviour, and annual check-ups.

"Global is currently working with the Ministries of Health in both Chile and Japan to ensure that the guidelines are available free of charge and easily found on their disability home pages,” it said.

Global is the largest non-profit in the United States, working to save lives and dramatically improve health outcomes for people with Down syndrome. - BERNAMA
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