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Tags Results for RARE GENETIC DISORDER
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A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
HEALTH
New policy on rare diseases brings hope to patients, carers
KUALA LUMPUR - Nine years ago, Sivasangaran Kumaran and his wife Prema Latha were overjoyed to...
Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Mikhael takes part in his daily exercise.
Mikhael takes part in his daily exercise.
National
Living with endless hunger: Couple shares their journey raising a child with PWS
SHAH ALAM – A married couple has chosen not to keep a stock of food or have a refrigerator at home...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
Cancer survivor Bazli Kezi. Photo by Bernama
Cancer survivor Bazli Kezi. Photo by Bernama
HEALTH
Li-Fraumeni syndrome: The rare genetic disorder that increases cancer risk
ON one of his visits to the hospital, cancer survivor Bazli Kezi reveals he has not gone for his...
New
An autistic child was found safe and handed over to his family members in Kampung Lumadan, Beaufort.
An autistic child was found safe and handed over to his family members in Kampung Lumadan, Beaufort.
Autistic boy reported missing found safe
BN Youth communications director Neow Choo Seong said reports circulating on social media regarding the condition of the animals should not be dismissed lightly.
BN Youth communications director Neow Choo Seong said reports circulating on social media regarding the condition of the animals should not be dismissed lightly.
Wildlife diplomacy must never come at the expense of animal welfare – BN Youth
Yazmin Aziz
Yazmin Aziz
Yazmin Aziz makes history as first Malaysian artist on Wish Bus
A general view of the destroyed buildings is pictured at Jabalia in the northern Gaza Strip on May 6, 2026. - (Photo by OMAR AL-QATTAA / AFP)
A general view of the destroyed buildings is pictured at Jabalia in the northern Gaza Strip on May 6, 2026. - (Photo by OMAR AL-QATTAA / AFP)
Gazans confined to less than half of strip: UN
The Minda Tenang Package offers relaxation and self-care opportunities, including MamaCare wellness massages and colour analysis to boost confidence and mental well-being. Photo for illustration purposes only. - Canva
The Minda Tenang Package offers relaxation and self-care opportunities, including MamaCare wellness massages and colour analysis to boost confidence and mental well-being. Photo for illustration purposes only. - Canva
National-level Mother’s Day Celebration 2026 to focus on mothers' well-being - LPPKN
Most Popular
Labour Day spotlight: The hidden struggles of e-hailing drivers
Photo for illustration purposes only. - CANVA
Photo for illustration purposes only. - CANVA
Economists warn RM5.4 billion cuts to health and higher education threaten Malaysia’s future
Photo for illustration purposes only. - CANVA
Photo for illustration purposes only. - CANVA
Healthy lifestyle key for artistes with irregular schedules, says Wan Azizah
CHERAS, 11 April -- Isteri Perdana Menteri juga Ahli Parlimen Bandar Tun Razak Datuk Seri Dr Wan Azizah Wan Ismail berucap seterusnya merasmikan Dewan Persatuan Kebajikan Sayangi Rakyat Kuala Lumpur hari ini. Wan Azizah berkata amalan kitar semula perlu dijadikan budaya dalam kalangan rakyat Malaysia bagi menangani isu pencemaran alam sekitar, terutama pencemaran plastik yang semakin membimbangkan. Beliau berkata sehubungan itu, usaha di peringkat komuniti seperti penubuhan pusat kitar semula berasaskan sukarelawan mampu menjadi model kepada masyarakat di seluruh negara. --fotoBERNAMA (2025) HAK CIPTA TERPELIHARA
CHERAS, 11 April -- Isteri Perdana Menteri juga Ahli Parlimen Bandar Tun Razak Datuk Seri Dr Wan Azizah Wan Ismail berucap seterusnya merasmikan Dewan Persatuan Kebajikan Sayangi Rakyat Kuala Lumpur hari ini. Wan Azizah berkata amalan kitar semula perlu dijadikan budaya dalam kalangan rakyat Malaysia bagi menangani isu pencemaran alam sekitar, terutama pencemaran plastik yang semakin membimbangkan. Beliau berkata sehubungan itu, usaha di peringkat komuniti seperti penubuhan pusat kitar semula berasaskan sukarelawan mampu menjadi model kepada masyarakat di seluruh negara. --fotoBERNAMA (2025) HAK CIPTA TERPELIHARA
Nine-year-old girl swept away by strong currents in Cheras drain
A search and rescue operation is underway for a nine-year-old girl who is feared drowned after falling into a drain at the Sri Hijau Condominium in Bandar Mahkota Cheras on Friday.
A search and rescue operation is underway for a nine-year-old girl who is feared drowned after falling into a drain at the Sri Hijau Condominium in Bandar Mahkota Cheras on Friday.
Pahang MB to meet with Taiping Zoo officials to discuss elephant issue
Pahang Menteri Besar Datuk Seri Wan Rosdy Wan Ismail said he will hold a meeting with the Taiping Zoo and Night Safari in the near future to discuss issues related to three elephants, Dara, Amoi and Kelat (DAK), currently at Tennoji Zoo, Japan. - Foto Bernama
Pahang Menteri Besar Datuk Seri Wan Rosdy Wan Ismail said he will hold a meeting with the Taiping Zoo and Night Safari in the near future to discuss issues related to three elephants, Dara, Amoi and Kelat (DAK), currently at Tennoji Zoo, Japan. - Foto Bernama
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