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Tags Results for
Rare Disease
Total matches: 40
A total of 94 passengers and crew members were evacuated on Sunday from the Hondius cruise ship affected by a deadly hantavirus outbreak, the Spanish health minister said. - Photo by AFP
World
WHO says no signs of larger outbreak as 11 Hantavirus cases linked to cruise ship
OVIEDO - The World Health Organisation (WHO) said Tuesday there is currently no indication that the...
A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
HEALTH
New policy on rare diseases brings hope to patients, carers
KUALA LUMPUR - Nine years ago, Sivasangaran Kumaran and his wife Prema Latha were overjoyed to...
Photo: Malaysian Rare Disorders Society website
HEALTH
Expand insurance, establish rare disease centres, say experts
KUALA LUMPUR - In recent years, the number of rare diseases recorded in Malaysia has been steadily...
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
National
Harsheetaa dies in US due to multiple organ failure, sepsis - Father
KUALA LUMPUR - Eight-year-old S. Harsheetaa Sai, who had undergone heart surgery in the United...
Photo for illustration purposes only.
HEALTH
Vitiligo a non-contagious, harmless skin condition, says expert
KUALA LUMPUR - About seven years ago, Farah (not her real name) found some white spots appearing on...
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Content creator Sofea Shra represented Malaysia as the only Southeast Asian creator invited to Huda Beauty’s brand trip for its new perfume launch. - Photo: sofeashra / Instagram
Huda Kattan in kebaya: Sofea Shra's styling moment is winning hearts online
Photo for illustration purposes only.
Southeast Asia's largest dinosaur discovered in Thailand
An uninterruptible power supply (UPS) room at Sasana Kijang, Bank Negara, caught fire on Friday.
UPS room at Sasana Kijang catches fire
Five Italians have died in a scuba diving accident in the Maldives, Italy's foreign ministry said on Thursday, with security forces in the Indian Ocean archipelago recovering one body. Photo for illustrative purposes only - Pixabay
Five Italians die in Maldives cave-diving tragedy
The rear section of the stage at SMK Putrajaya Presint 14(1) hall caught fire in an incident at around 6pm on Thursday.
Fire breaks out backstage at SMK Putrajaya Presint 14(1)
Most Popular
Indonesia’s Chromebook procurement scandal: What you need to know
Indonesia's former education minister Nadiem Makarim attends his trial at the Corruption Court in Jakarta on Jan 12, 2026. - (Photo by BAY ISMOYO / AFP)
NKVE accident: Viral video shows car struck three times near Duta Toll Plaza, one arrested
A multi-vehicle accident along the New Klang Valley Expressway (NKVE) near the Duta Toll Plaza on Friday night turned chaotic after a car was struck three times within minutes, in an incident that later went viral on social media.
CCTV captures repeated incidents of woman defecating in front of Seremban shop
CCTV footage at the location captured the actions of the woman, who is alleged to frequently defecate. Photo: NegeriSembilanKini
Road closures near Padang Merbok tomorrow: KL motorists advised to plan alternative routes
The public is advised to plan their journeys to avoid traffic congestion during the "XTEP 10KM Time Trial 2026” running programme in the capital tomorrow. Photo for illustrative purposes only - Canva
Police hunt man who lured boy with phone package offer before confining and sexually assaulting teen in Bukit Kemuning
Police are tracking down a man believed to have confined and sexually assaulted a 14-year-old boy in an apartment in Bukit Kemuning, Section 32, here, yesterday.
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