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Tags Results for Rare Disease
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Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
National
Harsheetaa dies in US due to multiple organ failure, sepsis - Father
KUALA LUMPUR - Eight-year-old S. Harsheetaa Sai, who had undergone heart surgery in the United...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Vitiligo a non-contagious, harmless skin condition, says expert
KUALA LUMPUR - About seven years ago, Farah (not her real name) found some white spots appearing on...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Rare Kidney Diseases: Who’s At Risk?" /><meta itemprop="description" content="Rare Kidney Diseases: Who’s At Risk?<br /><br />While rare kidney diseases can affect anyone, some are more common in certain ethnic groups. IgA nephropathy, for example, is more prevalent in Asian communities, likely due to a mix of genetics and environmental factors. <br /><br />Understanding these differences can help improve early detection and treatment.<br /><br />Learn more in the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch it now on Sinar Daily’s YouTube or visit www.sinardaily.my for the full episode.<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:47:04.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-IqW1dmOOkapwsFx/x120" /><meta itemprop="duration" content="P93S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcly8" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcly8"></script></div>
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Podcast
Rare Kidney Diseases: Who’s At Risk?
Rare Kidney Diseases: Who’s At Risk? While rare kidney diseases can affect anyone, some are more...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Why Do Rare Disease Often Get Misdiagnosed?" /><meta itemprop="description" content="Why Do Rare Disease Often Get Misdiagnosed?<br /><br />Lack of awareness, limited experience, and symptoms that mimic common illnesses make rare diseases difficult to detect. <br /><br />Many patients go years without answers, seeing multiple doctors before getting the right diagnosis.<br /><br />Let’s change that. Watch the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders, now on Sinar Daily’s YouTube channel or visit www.sinardaily.my to learn more.<br /><br />WATCH FULL VIDEO: <br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:31:39.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/X-IN41dmOAo7S_sxw/x120" /><meta itemprop="duration" content="P114S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fckhw" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fckhw"></script></div>
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Podcast
Why Do Rare Disease Often Get Misdiagnosed?
Why Do Rare Disease Often Get Misdiagnosed?Lack of awareness, limited experience, and symptoms that...
New
Tan Sri Annuar Musa. Bernama FILE PIX
Tan Sri Annuar Musa. Bernama FILE PIX
Matters between Pas, Bersatu progressing well - Muafakat Nasional chairman
Muhyiddin
Muhyiddin
Muhyiddin resigns as Perikatan Nasional chairman, effective Jan 1, 2026
Tan Sri Muhyiddin Yassin
Tan Sri Muhyiddin Yassin
Muhyiddin reportedly offers to step down as PN chief
Six residential units at the National Garden Apartment Flats on Jalan Sultan Nazrin Shah were almost completely destroyed, while four terrace houses at Kampung Kuala Pari Hilir near Menglembu were damaged in two separate fires on Monday.
Six residential units at the National Garden Apartment Flats on Jalan Sultan Nazrin Shah were almost completely destroyed, while four terrace houses at Kampung Kuala Pari Hilir near Menglembu were damaged in two separate fires on Monday.
Fire destroys six flat units and four terrace houses in Ipoh
Photo: IOM
Photo: IOM
Fire at Rohingya camp in Bangladesh damages dozens of shelters: UN migration agency
Most Popular
'First case in my almost 50-year career, I lost every single point' - Shafee
Lawyer Tan Sri Muhammad Shafee Abdullah during a press conference after the High Court sentenced former prime minister Datuk Seri Najib Razak to 15 years&#039; jail and imposed a total fine of RM11.4 billion after finding him guilty on four counts of abuse of power and 21 counts of money laundering involving RM2.3 billion in funds linked to 1MDB. - Bernama photo
Lawyer Tan Sri Muhammad Shafee Abdullah during a press conference after the High Court sentenced former prime minister Datuk Seri Najib Razak to 15 years' jail and imposed a total fine of RM11.4 billion after finding him guilty on four counts of abuse of power and 21 counts of money laundering involving RM2.3 billion in funds linked to 1MDB. - Bernama photo
Local engineer builds high-tech electronics capability
Azahar is also skilled in maintaining, restoring and reproducing complex high-tech electronic circuit board components that are no longer manufactured in their countries of origin - a task generally considered extremely challenging. - Bernama photo
Azahar is also skilled in maintaining, restoring and reproducing complex high-tech electronic circuit board components that are no longer manufactured in their countries of origin - a task generally considered extremely challenging. - Bernama photo
Johan and His Cats’ Jellybean dies suddenly, leaving fans mourning influencer feline
News about Jellybean was shared by Johan via Instagram on Monday.
News about Jellybean was shared by Johan via Instagram on Monday.
What we know so far about the alleged baby abuse case in Taman Desa Petaling
The footage was shared by a Threads user @liyanazulkifli__, who claimed that her child and several other babies were victims. - Photo: Threads / @liyanazulkifli__
The footage was shared by a Threads user @liyanazulkifli__, who claimed that her child and several other babies were victims. - Photo: Threads / @liyanazulkifli__
Muhyiddin reportedly offers to step down as PN chief
Tan Sri Muhyiddin Yassin
Tan Sri Muhyiddin Yassin
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