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Tags Results for Rare Disease
Total matches: 37
Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
National
Harsheetaa dies in US due to multiple organ failure, sepsis - Father
KUALA LUMPUR - Eight-year-old S. Harsheetaa Sai, who had undergone heart surgery in the United...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Vitiligo a non-contagious, harmless skin condition, says expert
KUALA LUMPUR - About seven years ago, Farah (not her real name) found some white spots appearing on...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
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Podcast
Rare Kidney Diseases: Who’s At Risk?
Rare Kidney Diseases: Who’s At Risk? While rare kidney diseases can affect anyone, some are more...
New
One of the biggest challenges of running the zoo was taking care of the animals, which sometimes caused his monthly spending to increase. - Bernama photo
One of the biggest challenges of running the zoo was taking care of the animals, which sometimes caused his monthly spending to increase. - Bernama photo
Si Bani Mini Zoo lets visitors get up close to more than 70 animals
A teenager scrolls through social media on her phone. (Photo by ANDER GILLENEA / AFP) AFP file photo for illustration purpose only
A teenager scrolls through social media on her phone. (Photo by ANDER GILLENEA / AFP) AFP file photo for illustration purpose only
Meta, TikTok and Google strengthen digital safety features for teenagers
Atilia Haron latest challenge comes in the form of acting in the musical theatre production ‘Najis Jadi Teman’, which she described as the most mentally and physically demanding experience of her career. Photo by Bernama
Atilia Haron latest challenge comes in the form of acting in the musical theatre production ‘Najis Jadi Teman’, which she described as the most mentally and physically demanding experience of her career. Photo by Bernama
Theatre more challenging than singing, says Atilia
WarnaRAYA x KLCC - Runway & Bazaar 2026, taking place at the Kuala Lumpur Convention Centre here today and tomorrow, is expected to feature up to 10 designers in the runway segment, each presenting their own interpretation of Hari Raya Aidilfitri attire. The accompanying bazaar will host around 60 booths offering fashion, beauty and lifestyle products.
WarnaRAYA x KLCC - Runway & Bazaar 2026, taking place at the Kuala Lumpur Convention Centre here today and tomorrow, is expected to feature up to 10 designers in the runway segment, each presenting their own interpretation of Hari Raya Aidilfitri attire. The accompanying bazaar will host around 60 booths offering fashion, beauty and lifestyle products.
See it, love it, buy it: WarnaRAYA merges fashion show and bazaar
Sunway Medical Centre Velocity (SMCV) Consultant Clinical Oncologist Dr Hafizah Zaharah Ahmad said early detection plays a decisive role in improving clinical outcomes, with survival rates exceeding 90 per cent when the disease is identified at an early stage. - 123RF photo
Sunway Medical Centre Velocity (SMCV) Consultant Clinical Oncologist Dr Hafizah Zaharah Ahmad said early detection plays a decisive role in improving clinical outcomes, with survival rates exceeding 90 per cent when the disease is identified at an early stage. - 123RF photo
Beyond the sniffles, how nasopharyngeal cancer often goes overlooked
Most Popular
Child opens car door, causes accident involving six vehicles along Jalan Tun Razak
A child inadvertently caused a road accident after opening a car door in open traffic, leading to two motorcycles crashing into each other.
A child inadvertently caused a road accident after opening a car door in open traffic, leading to two motorcycles crashing into each other.
Vehicles entering KL expected to nearly double ahead of CNY
Photo for illustration purposes only.
Photo for illustration purposes only.
New forensic review challenges Kurt Cobain's suicide ruling, says 'this is a homicide'
Kurt Cobain
Kurt Cobain
Federal Court reinstates Isa Samad's conviction and sentence, issues warrant of committal
Former Felda chairman Tan Sri Mohd Isa Abdul Samad has been ordered to begin serving a six-year prison sentence from Tuesday.
Former Felda chairman Tan Sri Mohd Isa Abdul Samad has been ordered to begin serving a six-year prison sentence from Tuesday.
Sultan Selangor’s decrees a wake-up call for law, harmony and sustainability
Sultan Selangor Sultan Sharafuddin Idris Shah (Photo from Selangor Royal Official)
Sultan Selangor Sultan Sharafuddin Idris Shah (Photo from Selangor Royal Official)
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