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<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What Is Defined as Rare Disease?" /><meta itemprop="description" content="What Is Defined as Rare Disease?<br /><br />Rare diseases may be uncommon individually, but together, they affect over 300 million people worldwide. <br /><br />In Malaysia, there’s no official definition, but the challenges are universal—delayed diagnosis, limited treatment options, and a lack of awareness.<br /><br />This World Rare Disease Day, let’s shine a light on these often-overlooked conditions. Catch the latest Life & Style Podcast episode - <br />World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch now on Sinar Daily’s YouTube channel or visit our website.<br /><br />#RareDiseaseDay #YouAreNotAlone #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:13:18.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-I2a1dmOAXFWItYR/x120" /><meta itemprop="duration" content="P79S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcjhg" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcjhg"></script></div>
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What Is Defined as Rare Disease?
What Is Defined as Rare Disease? Rare diseases may be uncommon individually, but together, they...
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
HEALTH
Rare Kidney Disease: The silent health crisis we need to talk about
For millions living with rare diseases, the road to diagnosis and treatment is often filled with...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE &amp; STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders<br /><br />Rare kidney diseases are often overlooked, making diagnosis and treatment a tough journey. <br /><br />In this Life & Style Podcast special for World Rare Disease Day 2025, Consultant Nephrologist at Sunway Medical Centre and Vice President of the Malaysian Society of Nephrology (MSN), Dr Rosnawati Yahya and Pediatric Nephrologist from the University of Colorado School of Medicine, United States (US), Professor Dr Bradley P Dixon share insights on the challenges patients face, the role of AI in early detection, and the urgent need for better awareness and care. <br /><br />Tune in as we break the silence on this hidden health crisis.<br /><br />#worldrarediseaseday #raredisease #lifeandstylepodcast #sinardailypodcast #rarekidneydisease" /><meta itemprop="uploadDate" content="2025-02-27T11:19:08.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/Xzxq81dm4gRrZ6Xxk/x120" /><meta itemprop="duration" content="P1934S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fal8o" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fal8o"></script></div>
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[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders
[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders Rare kidney...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Challenges in diagnosing aHUS" /><meta itemprop="description" content="Challenges in diagnosing aHUS<br /><br />What are the biggest challenges in diagnosing and treating Atypical Hemolytic Uremic Syndrome (aHUS) in Malaysia? <br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains it all in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS—from delayed diagnosis to limited testing and treatment access.<br /><br />Catch the full episode now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:58:04.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/XyQlg1dl2QKUsAse7/x120" /><meta itemprop="duration" content="P127S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f22ga" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f22ga"></script></div>
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Challenges in diagnosing aHUS
Challenges in diagnosing aHUS What are the biggest challenges in diagnosing and treating Atypical...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="How does aHUS progress if left untreated?" /><meta itemprop="description" content="How does aHUS progress if left untreated?<br /><br />Early detection of Atypical Hemolytic Uremic Syndrome (aHUS) can save lives. <br /><br />Some cases progress so fast that patients can die within days, while others develop more slowly—but without quick treatment, organ damage becomes permanent.<br /><br />The challenge? Many doctors miss the signs of this rare kidney disease. The sooner it’s diagnosed, the better the chances of survival. <br /><br />Prof Dr Hermann Haller breaks it all down in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS. <br /><br />Watch now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:48:27.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQeK1dl2HXGd8Whg/x120" /><meta itemprop="duration" content="P107S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f2238" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f2238"></script></div>
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How does aHUS progress if left untreated?
How does aHUS progress if left untreated? Early detection of Atypical Hemolytic Uremic Syndrome...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?" /><meta itemprop="description" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?<br /><br />Ever heard of Atypical Hemolytic Uremic Syndrome (aHUS)? This rare but serious disease causes the immune system to attack small blood vessels, leading to dangerous blood clots and kidney damage.<br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains how aHUS mimics other illnesses making diagnosis tricky.<br /><br />Don’t miss this special episode for World Rare Disease Day! Watch the full podcast at www.sinardaily.my or on Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Healthcare #Health #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:37:54.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQV01dl28zrCmGkm/x120" /><meta itemprop="duration" content="P118S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f21mo" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f21mo"></script></div>
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What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?
What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)? Ever heard of Atypical Hemolytic Uremic...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome<br /><br />Kidney disease is often linked to lifestyle choices like diet and hydration, but for those living with a rare kidney disease like Atypical Hemolytic Uremic Syndrome (aHUS), the reality is far more complex. <br /><br />This rare and life-threatening condition can strike suddenly, causing blood clots, organ failure, and lasting health issues.<br /><br />In the latest episode of Sinar Daily’s Life & Style Podcast, leading nephrologists Prof Lim Soo Kun and Prof Dr Hermann Haller discuss the major challenges of aHUS in Malaysia—misdiagnosis, slow test results, and limited access to treatment.<br /><br />With the upcoming World Rare Disease Day 2025 focusing on "More than you can imagine: an anthology of rare experiences," this conversation highlights why early diagnosis is crucial to saving lives.<br /><br />Tune in for the full in-depth discussion. <br />/><meta itemprop="uploadDate" content="2025-02-24T04:43:42.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyOTW1dk_cHrYvMmv/x120" /><meta itemprop="duration" content="P1944S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f1v8g" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f1v8g"></script></div>
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Podcast
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic...
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
HEALTH
The silent threat of aHUS: Why Malaysia struggles with early diagnosis, treatment
For many, kidney diseases are often associated with lifestyle choices—too much salt, too little...
Cancer survivor Bazli Kezi. Photo by Bernama
Cancer survivor Bazli Kezi. Photo by Bernama
HEALTH
Li-Fraumeni syndrome: The rare genetic disorder that increases cancer risk
ON one of his visits to the hospital, cancer survivor Bazli Kezi reveals he has not gone for his...
Falls among senior citizens are a significant yet often overlooked issue, with the WHO reporting that they cause about 684,000 deaths globally each year. Photo for illustrative purposes only - Canva
Falls among senior citizens are a significant yet often overlooked issue, with the WHO reporting that they cause about 684,000 deaths globally each year. Photo for illustrative purposes only - Canva
HEALTH
Seniors at risk: The danger of falls and how to prevent them
KUALA LUMPUR - Falls among senior citizens are a significant yet often overlooked issue, with the...
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Lawyer Muniandy Vestanathan, representing shipping company chief executive officer Datuk Seri R Jeyenderan, confirmed that Caprice, whose legal name is Ariz Ramli, had deposited the full amount into his client&#039;s law firm account.
Lawyer Muniandy Vestanathan, representing shipping company chief executive officer Datuk Seri R Jeyenderan, confirmed that Caprice, whose legal name is Ariz Ramli, had deposited the full amount into his client's law firm account.
Caprice settles court costs owed to businessman
Dr Harvinder Harchand, Director of LUSH Malaysia, welcomes guests to the first-ever LUSH Charity Pot Showcase Event, celebrating the incredible NGOs LUSH Malaysia partnered with throughout 2025 in driving positive change across Malaysia.
Dr Harvinder Harchand, Director of LUSH Malaysia, welcomes guests to the first-ever LUSH Charity Pot Showcase Event, celebrating the incredible NGOs LUSH Malaysia partnered with throughout 2025 in driving positive change across Malaysia.
LUSH Malaysia charts new advocacy path with purpose-led products and deeper NGO...
National Unity Minister Datuk Aaron Ago Dagang (centre) flashes a thumbs-up gesture after launching the 2026 unity theme, carrying the slogan “Together Building the Nation”, in Putrajaya on Tuesday. — Bernama photo
National Unity Minister Datuk Aaron Ago Dagang (centre) flashes a thumbs-up gesture after launching the 2026 unity theme, carrying the slogan “Together Building the Nation”, in Putrajaya on Tuesday. — Bernama photo
Nation-building is Malaysia’s shield against identity politics - Unity Minister
AEON Kuantan offers a wide range of fresh, high-quality grocery products, including household essentials, fresh produce and seafood.
AEON Kuantan offers a wide range of fresh, high-quality grocery products, including household essentials, fresh produce and seafood.
AEON expands east coast presence with first supermarket in Kuantan
According to data from the Public Gold website, the previous highest price in 2026 was RM687 per gram, while the lowest recorded price was RM613 per gram. Photo illustrated via Canva
According to data from the Public Gold website, the previous highest price in 2026 was RM687 per gram, while the lowest recorded price was RM613 per gram. Photo illustrated via Canva
Gold price surges to all-time high at RM701 per gram
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Preschool to begin at age five, Year One at six from 2027 – PM
Preschool education will start at the age of five, while entry into Year One will be at the age of six.
Preschool education will start at the age of five, while entry into Year One will be at the age of six.
Divorced couple detained for ‘khalwat’ in hotel
Investigations later revealed that the pair had previously been married but divorced about three to four years ago.
Investigations later revealed that the pair had previously been married but divorced about three to four years ago.
Doctor charged with murdering wife, son in Johor Bahru
Chia Tong Hong was charged with murdering his wife, Phun Lai Ling, 37 and their five-year-old son, Aaden Chia Yee Heng. Photo by Bernama
Chia Tong Hong was charged with murdering his wife, Phun Lai Ling, 37 and their five-year-old son, Aaden Chia Yee Heng. Photo by Bernama
Gunman jailed for life in killing of Japan ex-PM Abe
In this picture taken on July 24, 2019 Japanese Prime Minister Shinzo Abe speaks on the podium during a ceremony marking one year before the start of the Tokyo 2020 Olympic Games in Tokyo. Photo by Behrouz Mehri/AFP FILE PIX
In this picture taken on July 24, 2019 Japanese Prime Minister Shinzo Abe speaks on the podium during a ceremony marking one year before the start of the Tokyo 2020 Olympic Games in Tokyo. Photo by Behrouz Mehri/AFP FILE PIX
Invitations, not applications to return to Umno
Former Umno Youth chief Khairy Jamaluddin (centre), who was sacked in January 2023, attends the 2025 Umno Youth Wing General Assembly at Dewan Merdeka, World Trade Centre Kuala Lumpur (WTCKL), on Jan 15. (BERNAMA PHOTO)
Former Umno Youth chief Khairy Jamaluddin (centre), who was sacked in January 2023, attends the 2025 Umno Youth Wing General Assembly at Dewan Merdeka, World Trade Centre Kuala Lumpur (WTCKL), on Jan 15. (BERNAMA PHOTO)
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