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A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
HEALTH
New policy on rare diseases brings hope to patients, carers
KUALA LUMPUR - Nine years ago, Sivasangaran Kumaran and his wife Prema Latha were overjoyed to...
Photo: Malaysian Rare Disorders Society website
Photo: Malaysian Rare Disorders Society website
HEALTH
Expand insurance, establish rare disease centres, say experts
KUALA LUMPUR - In recent years, the number of rare diseases recorded in Malaysia has been steadily...
Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
National
Harsheetaa dies in US due to multiple organ failure, sepsis - Father
KUALA LUMPUR - Eight-year-old S. Harsheetaa Sai, who had undergone heart surgery in the United...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Vitiligo a non-contagious, harmless skin condition, says expert
KUALA LUMPUR - About seven years ago, Farah (not her real name) found some white spots appearing on...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
New
Mourners carry the body of Azzam Khalil al-Hayya, son of the deputy chairman of Hamas' Political Bureau Khalil al-Hayya, after the former was killed the previous day by Israeli bombardment. Photo by Omar Al-Qattaa/AFP
Mourners carry the body of Azzam Khalil al-Hayya, son of the deputy chairman of Hamas' Political Bureau Khalil al-Hayya, after the former was killed the previous day by Israeli bombardment. Photo by Omar Al-Qattaa/AFP
Hamas leader's son dies of injuries from Israeli strike in Gaza
Two former Chinese defence ministers, Wei Fenghe (right) and Li Shangfu, were both sentenced to death with a two-year reprieve over graft charges on Thursday. Photos of the former ministers: AFP FILE PIX
Two former Chinese defence ministers, Wei Fenghe (right) and Li Shangfu, were both sentenced to death with a two-year reprieve over graft charges on Thursday. Photos of the former ministers: AFP FILE PIX
Two former Chinese defence ministers sentenced to death with reprieve for graft
A Year Five pupil from a school in Batu Berendam was rushed to hospital after he reportedly fell from a corridor of the school building on Wednesday.
A Year Five pupil from a school in Batu Berendam was rushed to hospital after he reportedly fell from a corridor of the school building on Wednesday.
11-year-old boy falls from school building
Deputy Prime Minister Datuk Seri Dr Ahmad Zahid Hamidi. - Photo by Bernama
Deputy Prime Minister Datuk Seri Dr Ahmad Zahid Hamidi. - Photo by Bernama
SPM leavers encouraged to explore agriculture TVET
Deputy Prime Minister Datuk Seri Ahmad Zahid Hamidi.
Deputy Prime Minister Datuk Seri Ahmad Zahid Hamidi.
Zahid says ‘reject Umno’ chants stem from PH grassroots misunderstanding
Most Popular
Labour Day spotlight: The hidden struggles of e-hailing drivers
Photo for illustration purposes only. - CANVA
Photo for illustration purposes only. - CANVA
Kuih seller fined RM30,000 for sending obscene content via Telegram for commercial gain
A kuih seller was fined RM30,000 by the Sessions Court here today over charges of sending obscene content via Telegram for commercial gain two years ago.
A kuih seller was fined RM30,000 by the Sessions Court here today over charges of sending obscene content via Telegram for commercial gain two years ago.
Nine-year-old girl swept away by strong currents in Cheras drain
A search and rescue operation is underway for a nine-year-old girl who is feared drowned after falling into a drain at the Sri Hijau Condominium in Bandar Mahkota Cheras on Friday.
A search and rescue operation is underway for a nine-year-old girl who is feared drowned after falling into a drain at the Sri Hijau Condominium in Bandar Mahkota Cheras on Friday.
Healthy lifestyle key for artistes with irregular schedules, says Wan Azizah
CHERAS, 11 April -- Isteri Perdana Menteri juga Ahli Parlimen Bandar Tun Razak Datuk Seri Dr Wan Azizah Wan Ismail berucap seterusnya merasmikan Dewan Persatuan Kebajikan Sayangi Rakyat Kuala Lumpur hari ini. Wan Azizah berkata amalan kitar semula perlu dijadikan budaya dalam kalangan rakyat Malaysia bagi menangani isu pencemaran alam sekitar, terutama pencemaran plastik yang semakin membimbangkan. Beliau berkata sehubungan itu, usaha di peringkat komuniti seperti penubuhan pusat kitar semula berasaskan sukarelawan mampu menjadi model kepada masyarakat di seluruh negara. --fotoBERNAMA (2025) HAK CIPTA TERPELIHARA
CHERAS, 11 April -- Isteri Perdana Menteri juga Ahli Parlimen Bandar Tun Razak Datuk Seri Dr Wan Azizah Wan Ismail berucap seterusnya merasmikan Dewan Persatuan Kebajikan Sayangi Rakyat Kuala Lumpur hari ini. Wan Azizah berkata amalan kitar semula perlu dijadikan budaya dalam kalangan rakyat Malaysia bagi menangani isu pencemaran alam sekitar, terutama pencemaran plastik yang semakin membimbangkan. Beliau berkata sehubungan itu, usaha di peringkat komuniti seperti penubuhan pusat kitar semula berasaskan sukarelawan mampu menjadi model kepada masyarakat di seluruh negara. --fotoBERNAMA (2025) HAK CIPTA TERPELIHARA
Economists warn RM5.4 billion cuts to health and higher education threaten Malaysia’s future
Photo for illustration purposes only. - CANVA
Photo for illustration purposes only. - CANVA
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