tags - Sinar Daily

Please Log In
Tags Results for Rare Disease
Total matches: 37
Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
National
Harsheetaa dies in US due to multiple organ failure, sepsis - Father
KUALA LUMPUR - Eight-year-old S. Harsheetaa Sai, who had undergone heart surgery in the United...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Vitiligo a non-contagious, harmless skin condition, says expert
KUALA LUMPUR - About seven years ago, Farah (not her real name) found some white spots appearing on...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Rare Kidney Diseases: Who’s At Risk?" /><meta itemprop="description" content="Rare Kidney Diseases: Who’s At Risk?<br /><br />While rare kidney diseases can affect anyone, some are more common in certain ethnic groups. IgA nephropathy, for example, is more prevalent in Asian communities, likely due to a mix of genetics and environmental factors. <br /><br />Understanding these differences can help improve early detection and treatment.<br /><br />Learn more in the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch it now on Sinar Daily’s YouTube or visit www.sinardaily.my for the full episode.<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:47:04.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-IqW1dmOOkapwsFx/x120" /><meta itemprop="duration" content="P93S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcly8" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcly8"></script></div>
Play
Podcast
Rare Kidney Diseases: Who’s At Risk?
Rare Kidney Diseases: Who’s At Risk? While rare kidney diseases can affect anyone, some are more...
New
Photo: HAMZAH ZAINUDIN / FACEBOOK
Photo: HAMZAH ZAINUDIN / FACEBOOK
Axed Hamzah makes first move with tea session alongside Pas, Bersatu and former party...
Kuala Lumpur Police Chief Datuk Fadil Marsus - BERNAMA FILE PIX
Kuala Lumpur Police Chief Datuk Fadil Marsus - BERNAMA FILE PIX
Post-mortem reveals 89 injuries on woman killed by husband in Kepong
Photo for illustration purposes only.
Photo for illustration purposes only.
Body of pregnant woman found in a pool of blood, husband detained in Kota Tinggi
Photo for illustration purposes only.
Photo for illustration purposes only.
Vehicles entering KL expected to nearly double ahead of CNY
Bank Islam’s Officer-in Charge and Group Chief Business Officer – Retail Banking, Mizan Masram (back, centre), posing for a group photo with the winners at the Bank Islam Mega Financing and Al-Awfar 2025 Prize Presentation Ceremony at Menara Bank Islam on Monday. - Photo by MOHD HALIM ABDUL WAHID
Bank Islam’s Officer-in Charge and Group Chief Business Officer – Retail Banking, Mizan Masram (back, centre), posing for a group photo with the winners at the Bank Islam Mega Financing and Al-Awfar 2025 Prize Presentation Ceremony at Menara Bank Islam on Monday. - Photo by MOHD HALIM ABDUL WAHID
RM1 million boost for retirement: Sabah executive’s unexpected win
Most Popular
Child opens car door, causes accident involving six vehicles along Jalan Tun Razak
A child inadvertently caused a road accident after opening a car door in open traffic, leading to two motorcycles crashing into each other.
A child inadvertently caused a road accident after opening a car door in open traffic, leading to two motorcycles crashing into each other.
New forensic review challenges Kurt Cobain's suicide ruling, says 'this is a homicide'
Kurt Cobain
Kurt Cobain
Federal Court reinstates Isa Samad's conviction and sentence, issues warrant of committal
Former Felda chairman Tan Sri Mohd Isa Abdul Samad has been ordered to begin serving a six-year prison sentence from Tuesday.
Former Felda chairman Tan Sri Mohd Isa Abdul Samad has been ordered to begin serving a six-year prison sentence from Tuesday.
Malaysians still drawn to charm of reading physical books
The Reading Profile of Malaysians 2022/2023 study by the National Library of Malaysia recorded a positive shift in reading trends among Malaysians, who crave a variety of information in line with changing lifestyles and current technological developments. - Bernama photo
The Reading Profile of Malaysians 2022/2023 study by the National Library of Malaysia recorded a positive shift in reading trends among Malaysians, who crave a variety of information in line with changing lifestyles and current technological developments. - Bernama photo
Sultan Selangor’s decrees a wake-up call for law, harmony and sustainability
Sultan Selangor Sultan Sharafuddin Idris Shah (Photo from Selangor Royal Official)
Sultan Selangor Sultan Sharafuddin Idris Shah (Photo from Selangor Royal Official)
Sign up for
Newsletter
Subscribe for all stuff trending related.