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<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Why Do Rare Disease Often Get Misdiagnosed?" /><meta itemprop="description" content="Why Do Rare Disease Often Get Misdiagnosed?<br /><br />Lack of awareness, limited experience, and symptoms that mimic common illnesses make rare diseases difficult to detect. <br /><br />Many patients go years without answers, seeing multiple doctors before getting the right diagnosis.<br /><br />Let’s change that. Watch the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders, now on Sinar Daily’s YouTube channel or visit www.sinardaily.my to learn more.<br /><br />WATCH FULL VIDEO: <br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:31:39.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/X-IN41dmOAo7S_sxw/x120" /><meta itemprop="duration" content="P114S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fckhw" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fckhw"></script></div>
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Why Do Rare Disease Often Get Misdiagnosed?
Why Do Rare Disease Often Get Misdiagnosed?Lack of awareness, limited experience, and symptoms that...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What Is Defined as Rare Disease?" /><meta itemprop="description" content="What Is Defined as Rare Disease?<br /><br />Rare diseases may be uncommon individually, but together, they affect over 300 million people worldwide. <br /><br />In Malaysia, there’s no official definition, but the challenges are universal—delayed diagnosis, limited treatment options, and a lack of awareness.<br /><br />This World Rare Disease Day, let’s shine a light on these often-overlooked conditions. Catch the latest Life & Style Podcast episode - <br />World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch now on Sinar Daily’s YouTube channel or visit our website.<br /><br />#RareDiseaseDay #YouAreNotAlone #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:13:18.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-I2a1dmOAXFWItYR/x120" /><meta itemprop="duration" content="P79S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcjhg" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcjhg"></script></div>
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Podcast
What Is Defined as Rare Disease?
What Is Defined as Rare Disease? Rare diseases may be uncommon individually, but together, they...
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
HEALTH
Rare Kidney Disease: The silent health crisis we need to talk about
For millions living with rare diseases, the road to diagnosis and treatment is often filled with...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE &amp; STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders<br /><br />Rare kidney diseases are often overlooked, making diagnosis and treatment a tough journey. <br /><br />In this Life & Style Podcast special for World Rare Disease Day 2025, Consultant Nephrologist at Sunway Medical Centre and Vice President of the Malaysian Society of Nephrology (MSN), Dr Rosnawati Yahya and Pediatric Nephrologist from the University of Colorado School of Medicine, United States (US), Professor Dr Bradley P Dixon share insights on the challenges patients face, the role of AI in early detection, and the urgent need for better awareness and care. <br /><br />Tune in as we break the silence on this hidden health crisis.<br /><br />#worldrarediseaseday #raredisease #lifeandstylepodcast #sinardailypodcast #rarekidneydisease" /><meta itemprop="uploadDate" content="2025-02-27T11:19:08.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/Xzxq81dm4gRrZ6Xxk/x120" /><meta itemprop="duration" content="P1934S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fal8o" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fal8o"></script></div>
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[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders
[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders Rare kidney...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?" /><meta itemprop="description" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?<br /><br />Ever heard of Atypical Hemolytic Uremic Syndrome (aHUS)? This rare but serious disease causes the immune system to attack small blood vessels, leading to dangerous blood clots and kidney damage.<br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains how aHUS mimics other illnesses making diagnosis tricky.<br /><br />Don’t miss this special episode for World Rare Disease Day! Watch the full podcast at www.sinardaily.my or on Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Healthcare #Health #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:37:54.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQV01dl28zrCmGkm/x120" /><meta itemprop="duration" content="P118S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f21mo" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f21mo"></script></div>
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What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?
What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)? Ever heard of Atypical Hemolytic Uremic...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome<br /><br />Kidney disease is often linked to lifestyle choices like diet and hydration, but for those living with a rare kidney disease like Atypical Hemolytic Uremic Syndrome (aHUS), the reality is far more complex. <br /><br />This rare and life-threatening condition can strike suddenly, causing blood clots, organ failure, and lasting health issues.<br /><br />In the latest episode of Sinar Daily’s Life & Style Podcast, leading nephrologists Prof Lim Soo Kun and Prof Dr Hermann Haller discuss the major challenges of aHUS in Malaysia—misdiagnosis, slow test results, and limited access to treatment.<br /><br />With the upcoming World Rare Disease Day 2025 focusing on "More than you can imagine: an anthology of rare experiences," this conversation highlights why early diagnosis is crucial to saving lives.<br /><br />Tune in for the full in-depth discussion. <br />/><meta itemprop="uploadDate" content="2025-02-24T04:43:42.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyOTW1dk_cHrYvMmv/x120" /><meta itemprop="duration" content="P1944S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f1v8g" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f1v8g"></script></div>
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Podcast
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic...
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
HEALTH
The silent threat of aHUS: Why Malaysia struggles with early diagnosis, treatment
For many, kidney diseases are often associated with lifestyle choices—too much salt, too little...
SMA Type 2 Patient, Miza Marsya Roslan (centre, on a wheelchair) with UMMC’s Rare Disease Awareness event’s committees on Feb 22 at Sunway Velocity Mall.
SMA Type 2 Patient, Miza Marsya Roslan (centre, on a wheelchair) with UMMC’s Rare Disease Awareness event’s committees on Feb 22 at Sunway Velocity Mall.
National
Shedding light on Rare Diseases: UMMC brings awareness to the public
KUALA LUMPUR – In an effort to raise awareness and educate Malaysians on the challenges faced by...
The ordeal faced by toddler Muhammad Hariz Iman Mohd Herman, who lost his sight due to nerve cancer, caught the attention of Prime Minister Datuk Seri Anwar Ibrahim when he channeled a donation of RM10,000 to him. - Photo source: Social media
The ordeal faced by toddler Muhammad Hariz Iman Mohd Herman, who lost his sight due to nerve cancer, caught the attention of Prime Minister Datuk Seri Anwar Ibrahim when he channeled a donation of RM10,000 to him. - Photo source: Social media
National
Cancer-stricken toddler receives donation from PM
KUALA LUMPUR - The ordeal faced by toddler Muhammad Hariz Iman Mohd Herman, who lost his sight due...
Haliza Md Kassim with her son Mohammad Irfan Zahran Mohd Adam who is suffering from Mucopolysaccharidosis Type II (MPS II) also known as Hunter Syndrome. -Photo by Bernama
Haliza Md Kassim with her son Mohammad Irfan Zahran Mohd Adam who is suffering from Mucopolysaccharidosis Type II (MPS II) also known as Hunter Syndrome. -Photo by Bernama
Features
Passing on destructive gene
KUALA LUMPUR - The test was positive. Haliza Md Kasim’s eyes widened. Despite having gone through...
New
Chow Yat-ming, commissioner of police of the Hong Kong Special Administrative Region government, said that Hong Kong police had been pursuing leads and recently obtained intelligence that the suspect was hiding in Thailand. (Photo by Peter PARKS / AFP photo for illustration purpose only)
Chow Yat-ming, commissioner of police of the Hong Kong Special Administrative Region government, said that Hong Kong police had been pursuing leads and recently obtained intelligence that the suspect was hiding in Thailand. (Photo by Peter PARKS / AFP photo for illustration purpose only)
Murder suspect on run for 37 years escorted back to HK from Thailand
The eruption lasted around 25 seconds, with a maximum amplitude of 25.9 millimetres. (Photo by Metrison / AFP file photo)
The eruption lasted around 25 seconds, with a maximum amplitude of 25.9 millimetres. (Photo by Metrison / AFP file photo)
Indonesia’s Mount Marapi erupts, spews ash 600 metres into air
Pas secretary-general Datuk Seri Takiyuddin Hassan has confirmed that the party has identified a candidate to be appointed as Perikatan Nasional (PN) chairman.
Pas secretary-general Datuk Seri Takiyuddin Hassan has confirmed that the party has identified a candidate to be appointed as Perikatan Nasional (PN) chairman.
Pas already has candidate for PN chairman, says Takiyuddin
A fire destroyed three houses along Jalan Nuri, Kampung Seri Cheeding here early Friday morning.
A fire destroyed three houses along Jalan Nuri, Kampung Seri Cheeding here early Friday morning.
Three-year-old boy dies in fire that destroyed three homes
The recent meeting between Muhyiddin (third from left) and Abdul Hadi (second from left), accompanied by Pas and Bersatu leaders, was supposed to serve as a catalyst to resolve the polemic over the vacancy of the PN Chairman post that has dragged on for nearly a month
The recent meeting between Muhyiddin (third from left) and Abdul Hadi (second from left), accompanied by Pas and Bersatu leaders, was supposed to serve as a catalyst to resolve the polemic over the vacancy of the PN Chairman post that has dragged on for nearly a month
Pas confirms move to take over PN chairman post with Muhyiddin’s consent
Most Popular
Restaurant allegedly washed leftover food before reselling
A nasi kandar restaurant in the district has been alleged to have washed leftover food that had already been served to customers before reusing it the following day.
A nasi kandar restaurant in the district has been alleged to have washed leftover food that had already been served to customers before reusing it the following day.
Girl injured in alleged attack, attempted abduction while walking to Rawang night market
Neighbours who noticed the commotion rushed to the scene and managed to stop the attack.
Neighbours who noticed the commotion rushed to the scene and managed to stop the attack.
Single mother found dead with slash wounds on neck
A single mother was found dead with slash wounds to her neck at a first-floor unit of Flat Sri Murni, Sungai Dua, here on Tuesday.
A single mother was found dead with slash wounds to her neck at a first-floor unit of Flat Sri Murni, Sungai Dua, here on Tuesday.
Bill Gates says he regrets 'every minute' with Epstein
Microsoft co-founder and US philanthropist Bill Gates gestures as he speaks during the World Economic Forum (WEF) annual meeting in Davos on January 21, 2026. The World Economic Forum takes place in Davos from January 19 to January 23, 2026. (Photo by Fabrice COFFRINI / AFP)
Microsoft co-founder and US philanthropist Bill Gates gestures as he speaks during the World Economic Forum (WEF) annual meeting in Davos on January 21, 2026. The World Economic Forum takes place in Davos from January 19 to January 23, 2026. (Photo by Fabrice COFFRINI / AFP)
SK Labu Besar student reports bullying case to Home Minister, Kedah police chief
A bullying case involving a student at SK Labu Besar in Kulim, Kedah has drawn the attention of senior authorities after the victim’s family raised the matter directly with the Home Minister and the Kedah police chief. - Photo: Screenshot from @misiupdate / Tiktok
A bullying case involving a student at SK Labu Besar in Kulim, Kedah has drawn the attention of senior authorities after the victim’s family raised the matter directly with the Home Minister and the Kedah police chief. - Photo: Screenshot from @misiupdate / Tiktok
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