comScore

tags - Sinar Daily

Please Log In
Tags Results for Rare Diseases
Total matches: 29
A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
HEALTH
New policy on rare diseases brings hope to patients, carers
KUALA LUMPUR - Nine years ago, Sivasangaran Kumaran and his wife Prema Latha were overjoyed to...
Photo: Malaysian Rare Disorders Society website
Photo: Malaysian Rare Disorders Society website
HEALTH
Expand insurance, establish rare disease centres, say experts
KUALA LUMPUR - In recent years, the number of rare diseases recorded in Malaysia has been steadily...
Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Why Do Rare Disease Often Get Misdiagnosed?" /><meta itemprop="description" content="Why Do Rare Disease Often Get Misdiagnosed?<br /><br />Lack of awareness, limited experience, and symptoms that mimic common illnesses make rare diseases difficult to detect. <br /><br />Many patients go years without answers, seeing multiple doctors before getting the right diagnosis.<br /><br />Let’s change that. Watch the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders, now on Sinar Daily’s YouTube channel or visit www.sinardaily.my to learn more.<br /><br />WATCH FULL VIDEO: <br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:31:39.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/X-IN41dmOAo7S_sxw/x120" /><meta itemprop="duration" content="P114S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fckhw" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fckhw"></script></div>
Play
Podcast
Why Do Rare Disease Often Get Misdiagnosed?
Why Do Rare Disease Often Get Misdiagnosed?Lack of awareness, limited experience, and symptoms that...
New
Photo for illustration purposes only.
Photo for illustration purposes only.
Malaysia risks raising AI-savvy generation lacking critical thinking skills - Expert
A general view shows private and public residential high-rise buildings in Singapore on Feb 27, 2026. - (Photo by ROSLAN RAHMAN / AFP)
A general view shows private and public residential high-rise buildings in Singapore on Feb 27, 2026. - (Photo by ROSLAN RAHMAN / AFP)
Singapore workers among world's most active AI users: Report
Social activist Tan Sri Lee Lam Thye - BERNAMA FILE PIX
Social activist Tan Sri Lee Lam Thye - BERNAMA FILE PIX
Protecting e-hailing drivers must be a national priority - Lee Lam Thye
Anne Hathaway has announced she is pregnant, sharing the news in an Instagram video while wearing a flowing white dress and showing off her baby bump. Photo: Instagram/ @annehathaway
Anne Hathaway has announced she is pregnant, sharing the news in an Instagram video while wearing a flowing white dress and showing off her baby bump. Photo: Instagram/ @annehathaway
Anne Hathaway announces pregnancy with third child
Yoga is no longer associated with chanting or ancient rituals, but is instead seen as a way to improve movement, practise mindful breathing and become more present in daily life. - Photo by Canva
Yoga is no longer associated with chanting or ancient rituals, but is instead seen as a way to improve movement, practise mindful breathing and become more present in daily life. - Photo by Canva
Faith intact: Yoga and mindfulness without compromising beliefs
Most Popular
Rohingya activist draws backlash after Australia speech criticising Malaysia
A former Rohingya refugee turned activist has faced criticism from Malaysian social media users after remarks made during an awards speech in Australia, in which she highlighted Malaysia’s treatment of Rohingya children, went viral online. Screenshots from Noor Azizah&#039;s Instagram video
A former Rohingya refugee turned activist has faced criticism from Malaysian social media users after remarks made during an awards speech in Australia, in which she highlighted Malaysia’s treatment of Rohingya children, went viral online. Screenshots from Noor Azizah's Instagram video
Mama made it: When a manuscript comes home
No Image Caption
Pas trying to consolidate grip on Perikatan Nasional, says Tun Faisal
Bersatu information chief Datuk Tun Faisal Ismail Azizhas accused Pas of attempting to consolidate its grip on Perikatan Nasional (PN) by increasing its representation in the coalition&#039;s top decision-making body while reducing Bersatu&#039;s influence. FILE PIX
Bersatu information chief Datuk Tun Faisal Ismail Azizhas accused Pas of attempting to consolidate its grip on Perikatan Nasional (PN) by increasing its representation in the coalition's top decision-making body while reducing Bersatu's influence. FILE PIX
Bersatu on the brink of collapse as Muhyiddin fails to manage Pas conflict, says Wan Ahmad Fayhsal
Bersatu is on the brink of collapse due to party president Tan Sri Muhyiddin Yassin’s failure to manage the internal conflict with Pas, according to Machang member of parliament Wan Ahmad Fayhsal Wan Ahmad Kamal.
Bersatu is on the brink of collapse due to party president Tan Sri Muhyiddin Yassin’s failure to manage the internal conflict with Pas, according to Machang member of parliament Wan Ahmad Fayhsal Wan Ahmad Kamal.
Nancy Shukri's husband passes away
The passing of Datuk Kamil Misuari was announced by the Ministry of Women, Family and Community Development (KPWKM) minister&#039;s office in a media statement.
The passing of Datuk Kamil Misuari was announced by the Ministry of Women, Family and Community Development (KPWKM) minister's office in a media statement.
Sign up for
Newsletter
Subscribe for all stuff trending related.