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Tags Results for Rare Diseases
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A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
HEALTH
New policy on rare diseases brings hope to patients, carers
KUALA LUMPUR - Nine years ago, Sivasangaran Kumaran and his wife Prema Latha were overjoyed to...
Photo: Malaysian Rare Disorders Society website
Photo: Malaysian Rare Disorders Society website
HEALTH
Expand insurance, establish rare disease centres, say experts
KUALA LUMPUR - In recent years, the number of rare diseases recorded in Malaysia has been steadily...
Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Why Do Rare Disease Often Get Misdiagnosed?" /><meta itemprop="description" content="Why Do Rare Disease Often Get Misdiagnosed?<br /><br />Lack of awareness, limited experience, and symptoms that mimic common illnesses make rare diseases difficult to detect. <br /><br />Many patients go years without answers, seeing multiple doctors before getting the right diagnosis.<br /><br />Let’s change that. Watch the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders, now on Sinar Daily’s YouTube channel or visit www.sinardaily.my to learn more.<br /><br />WATCH FULL VIDEO: <br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:31:39.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/X-IN41dmOAo7S_sxw/x120" /><meta itemprop="duration" content="P114S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fckhw" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fckhw"></script></div>
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Podcast
Why Do Rare Disease Often Get Misdiagnosed?
Why Do Rare Disease Often Get Misdiagnosed?Lack of awareness, limited experience, and symptoms that...
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Researchers in Australia have identified a new extinct species of koala with "large, mobile lips" after re-examining fossils in a Perth museum, reported German Press Agency (dpa). Photo for illustrative purposes only - AFP FILE PIX
Researchers in Australia have identified a new extinct species of koala with "large, mobile lips" after re-examining fossils in a Perth museum, reported German Press Agency (dpa). Photo for illustrative purposes only - AFP FILE PIX
New species of big-lipped koala identified in Western Australia
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[TOP NEWS PODCAST] Art vs Boundaries — Where Should the Line Be Drawn?"><meta itemprop="description" content="One viral clip and the internet is split. Bold expression or going too far? As universities tighten control, the spotlight is now on artistic freedom, censorship and where institutional boundaries should begin or end.<br /><br />In this conversation, Aswara Assistant Director Corporate Imee Nadia Abdul Hadi weighs in on improvisation in performance, defining “sensitivities” and whether fear of viral backlash is pushing students towards self-censorship.<br /><br />As people debate, bigger questions emerge are tighter rules protecting values or limiting expression? And should university theatre adopt stricter guidelines like film rating systems?<br /><br />Watch the full discussion now on Sinar Daily.<br /><br />#TopNews #Art #Theather #Aswara #SinarDaily"><meta itemprop="uploadDate" content="2026-05-06T07:31:31.000Z"><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/ataGo1f-k_5whPcid/x120"><meta itemprop="duration" content="P2094S"><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=xa89lbm"><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="xa89lbm"></script></div>
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[TOP NEWS PODCAST] Art vs Boundaries — Where Should the Line Be Drawn?
Wan Rosdy
Wan Rosdy
Don't be a troublemaker, Guan Eng - Wan Rosdy
Harrison (front, centre) and residents inspect the drain at Lorong Cakera Purnama 12/27 following the incident in which a child died after falling into it on April 28.
Harrison (front, centre) and residents inspect the drain at Lorong Cakera Purnama 12/27 following the incident in which a child died after falling into it on April 28.
Puncak Alam residents fear another tragedy as hazardous drain remains uncovered
Tennoji Zoo in Osaka, Japan, has released a series of photos of three Malaysian elephants - Dara, Amoi and Kelat - saying the animals are in good condition under their care. Photo: tennojizoo.jp
Tennoji Zoo in Osaka, Japan, has released a series of photos of three Malaysian elephants - Dara, Amoi and Kelat - saying the animals are in good condition under their care. Photo: tennojizoo.jp
Tennoji Zoo shares photos of Dara, Amoi and Kelat, says elephants are doing well
Most Popular
Labour Day spotlight: The hidden struggles of e-hailing drivers
Photo for illustration purposes only. - CANVA
Photo for illustration purposes only. - CANVA
Nine-year-old girl swept away by strong currents in Cheras drain
A search and rescue operation is underway for a nine-year-old girl who is feared drowned after falling into a drain at the Sri Hijau Condominium in Bandar Mahkota Cheras on Friday.
A search and rescue operation is underway for a nine-year-old girl who is feared drowned after falling into a drain at the Sri Hijau Condominium in Bandar Mahkota Cheras on Friday.
Economists warn RM5.4 billion cuts to health and higher education threaten Malaysia’s future
Photo for illustration purposes only. - CANVA
Photo for illustration purposes only. - CANVA
Healthy lifestyle key for artistes with irregular schedules, says Wan Azizah
CHERAS, 11 April -- Isteri Perdana Menteri juga Ahli Parlimen Bandar Tun Razak Datuk Seri Dr Wan Azizah Wan Ismail berucap seterusnya merasmikan Dewan Persatuan Kebajikan Sayangi Rakyat Kuala Lumpur hari ini. Wan Azizah berkata amalan kitar semula perlu dijadikan budaya dalam kalangan rakyat Malaysia bagi menangani isu pencemaran alam sekitar, terutama pencemaran plastik yang semakin membimbangkan. Beliau berkata sehubungan itu, usaha di peringkat komuniti seperti penubuhan pusat kitar semula berasaskan sukarelawan mampu menjadi model kepada masyarakat di seluruh negara. --fotoBERNAMA (2025) HAK CIPTA TERPELIHARA
CHERAS, 11 April -- Isteri Perdana Menteri juga Ahli Parlimen Bandar Tun Razak Datuk Seri Dr Wan Azizah Wan Ismail berucap seterusnya merasmikan Dewan Persatuan Kebajikan Sayangi Rakyat Kuala Lumpur hari ini. Wan Azizah berkata amalan kitar semula perlu dijadikan budaya dalam kalangan rakyat Malaysia bagi menangani isu pencemaran alam sekitar, terutama pencemaran plastik yang semakin membimbangkan. Beliau berkata sehubungan itu, usaha di peringkat komuniti seperti penubuhan pusat kitar semula berasaskan sukarelawan mampu menjadi model kepada masyarakat di seluruh negara. --fotoBERNAMA (2025) HAK CIPTA TERPELIHARA
Pahang MB to meet with Taiping Zoo officials to discuss elephant issue
Pahang Menteri Besar Datuk Seri Wan Rosdy Wan Ismail said he will hold a meeting with the Taiping Zoo and Night Safari in the near future to discuss issues related to three elephants, Dara, Amoi and Kelat (DAK), currently at Tennoji Zoo, Japan. - Foto Bernama
Pahang Menteri Besar Datuk Seri Wan Rosdy Wan Ismail said he will hold a meeting with the Taiping Zoo and Night Safari in the near future to discuss issues related to three elephants, Dara, Amoi and Kelat (DAK), currently at Tennoji Zoo, Japan. - Foto Bernama
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