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A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
A family portrait of Sivasangaran Kumaran, 48, with his daughter Swathi Nisha Nair, who has Pompe disease — a rare genetic disorder that weakens the heart and muscles — during the convocation of his wife Prema Latha (second from left) and their eldest son, S.K. Harrish. - Photo by Bernama
HEALTH
New policy on rare diseases brings hope to patients, carers
KUALA LUMPUR - Nine years ago, Sivasangaran Kumaran and his wife Prema Latha were overjoyed to...
Photo: Malaysian Rare Disorders Society website
Photo: Malaysian Rare Disorders Society website
HEALTH
Expand insurance, establish rare disease centres, say experts
KUALA LUMPUR - In recent years, the number of rare diseases recorded in Malaysia has been steadily...
Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Why Do Rare Disease Often Get Misdiagnosed?" /><meta itemprop="description" content="Why Do Rare Disease Often Get Misdiagnosed?<br /><br />Lack of awareness, limited experience, and symptoms that mimic common illnesses make rare diseases difficult to detect. <br /><br />Many patients go years without answers, seeing multiple doctors before getting the right diagnosis.<br /><br />Let’s change that. Watch the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders, now on Sinar Daily’s YouTube channel or visit www.sinardaily.my to learn more.<br /><br />WATCH FULL VIDEO: <br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:31:39.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/X-IN41dmOAo7S_sxw/x120" /><meta itemprop="duration" content="P114S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fckhw" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fckhw"></script></div>
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Podcast
Why Do Rare Disease Often Get Misdiagnosed?
Why Do Rare Disease Often Get Misdiagnosed?Lack of awareness, limited experience, and symptoms that...
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Police have sealed off five zones within disaster-affected areas in Bercham and restricted movement in and out to prevent theft or house break-ins. Photo by Bernama
Police have sealed off five zones within disaster-affected areas in Bercham and restricted movement in and out to prevent theft or house break-ins. Photo by Bernama
Police seal off storm-hit areas in Bercham, movement restricted
A woman walks past an advertisement for South Korean skincare brand Mamonde in front of a beauty store. (AFP photo)
A woman walks past an advertisement for South Korean skincare brand Mamonde in front of a beauty store. (AFP photo)
Indie brands and TikTok virality spark massive second global K-beauty boom
Defence Minister Datuk Seri Mohamed Khaled Nordin said the incident occurred at 9.25 am local time, about one kilometre west of the United Nations Position (UNP) 6-43 in the Tibnin area. Photo by Bernama
Defence Minister Datuk Seri Mohamed Khaled Nordin said the incident occurred at 9.25 am local time, about one kilometre west of the United Nations Position (UNP) 6-43 in the Tibnin area. Photo by Bernama
West Asia conflict: Malbatt’s positioning provides security edge - Mohamed Khaled
Datuk Seri Mohamed Khaled Nordin talking to the media at Semarak ATM Bersama Komuniti at Dewan ESSCOM, Balai Polis Karakit, Pulau Banggi on Nov 24, 2025. (BERNAMA PHOTO)
Datuk Seri Mohamed Khaled Nordin talking to the media at Semarak ATM Bersama Komuniti at Dewan ESSCOM, Balai Polis Karakit, Pulau Banggi on Nov 24, 2025. (BERNAMA PHOTO)
Army halts hand grenade training as probe into blast is expedited - Mohamed Khaled
Universiti Kebangsaan Malaysia Dean of Faculty of Islamic Studies Professor Datuk Dr Mohd Izhar Ariff Mohd Kashim
Universiti Kebangsaan Malaysia Dean of Faculty of Islamic Studies Professor Datuk Dr Mohd Izhar Ariff Mohd Kashim
Digital sins: If it involves others’ rights, make amends with an apology
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Rohingya activist draws backlash after Australia speech criticising Malaysia
A former Rohingya refugee turned activist has faced criticism from Malaysian social media users after remarks made during an awards speech in Australia, in which she highlighted Malaysia’s treatment of Rohingya children, went viral online. Screenshots from Noor Azizah&#039;s Instagram video
A former Rohingya refugee turned activist has faced criticism from Malaysian social media users after remarks made during an awards speech in Australia, in which she highlighted Malaysia’s treatment of Rohingya children, went viral online. Screenshots from Noor Azizah's Instagram video
Mama made it: When a manuscript comes home
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Pas trying to consolidate grip on Perikatan Nasional, says Tun Faisal
Bersatu information chief Datuk Tun Faisal Ismail Azizhas accused Pas of attempting to consolidate its grip on Perikatan Nasional (PN) by increasing its representation in the coalition&#039;s top decision-making body while reducing Bersatu&#039;s influence. FILE PIX
Bersatu information chief Datuk Tun Faisal Ismail Azizhas accused Pas of attempting to consolidate its grip on Perikatan Nasional (PN) by increasing its representation in the coalition's top decision-making body while reducing Bersatu's influence. FILE PIX
Bersatu on the brink of collapse as Muhyiddin fails to manage Pas conflict, says Wan Ahmad Fayhsal
Bersatu is on the brink of collapse due to party president Tan Sri Muhyiddin Yassin’s failure to manage the internal conflict with Pas, according to Machang member of parliament Wan Ahmad Fayhsal Wan Ahmad Kamal.
Bersatu is on the brink of collapse due to party president Tan Sri Muhyiddin Yassin’s failure to manage the internal conflict with Pas, according to Machang member of parliament Wan Ahmad Fayhsal Wan Ahmad Kamal.
Selangor rolls out RM209m economic shield to combat layoffs, supply crisis
Menteri Besar Amirudin Shari unveils 15 new initiatives under Phase 2 of the Selangor Resilience Strengthening Package, offering rent cuts, interest-free loans, and AI training. (BERNAMA photo)
Menteri Besar Amirudin Shari unveils 15 new initiatives under Phase 2 of the Selangor Resilience Strengthening Package, offering rent cuts, interest-free loans, and AI training. (BERNAMA photo)
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