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Tags Results for rare diseases
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Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Why Do Rare Disease Often Get Misdiagnosed?" /><meta itemprop="description" content="Why Do Rare Disease Often Get Misdiagnosed?<br /><br />Lack of awareness, limited experience, and symptoms that mimic common illnesses make rare diseases difficult to detect. <br /><br />Many patients go years without answers, seeing multiple doctors before getting the right diagnosis.<br /><br />Let’s change that. Watch the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders, now on Sinar Daily’s YouTube channel or visit www.sinardaily.my to learn more.<br /><br />WATCH FULL VIDEO: <br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:31:39.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/X-IN41dmOAo7S_sxw/x120" /><meta itemprop="duration" content="P114S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fckhw" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fckhw"></script></div>
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Podcast
Why Do Rare Disease Often Get Misdiagnosed?
Why Do Rare Disease Often Get Misdiagnosed?Lack of awareness, limited experience, and symptoms that...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What Is Defined as Rare Disease?" /><meta itemprop="description" content="What Is Defined as Rare Disease?<br /><br />Rare diseases may be uncommon individually, but together, they affect over 300 million people worldwide. <br /><br />In Malaysia, there’s no official definition, but the challenges are universal—delayed diagnosis, limited treatment options, and a lack of awareness.<br /><br />This World Rare Disease Day, let’s shine a light on these often-overlooked conditions. Catch the latest Life & Style Podcast episode - <br />World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch now on Sinar Daily’s YouTube channel or visit our website.<br /><br />#RareDiseaseDay #YouAreNotAlone #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:13:18.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-I2a1dmOAXFWItYR/x120" /><meta itemprop="duration" content="P79S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcjhg" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcjhg"></script></div>
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Podcast
What Is Defined as Rare Disease?
What Is Defined as Rare Disease? Rare diseases may be uncommon individually, but together, they...
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
HEALTH
Rare Kidney Disease: The silent health crisis we need to talk about
For millions living with rare diseases, the road to diagnosis and treatment is often filled with...
New
From left: Serai Group managing director Datuk Mohd Najib Abdul Hamid, CIMB chairman Datuk Syed Zaid Albar, Tengku Ampuan Pahang Tunku Azizah Aminah Maimunah Iskandariah; motorsports athlete and CIMB brand partner Amer Harris Jefry; Tengku Puteri Raja Tengku Puteri Iman Afzan and Tengku Puteri Raja Tengku Puteri Afzan Aminah Hafidzatullah and Sime Darby Property Datuk Seri Azmir Merican at the launch of Minggu Seri-Ibu Kraf CIMB. - Photo courtesy of CIMB
From left: Serai Group managing director Datuk Mohd Najib Abdul Hamid, CIMB chairman Datuk Syed Zaid Albar, Tengku Ampuan Pahang Tunku Azizah Aminah Maimunah Iskandariah; motorsports athlete and CIMB brand partner Amer Harris Jefry; Tengku Puteri Raja Tengku Puteri Iman Afzan and Tengku Puteri Raja Tengku Puteri Afzan Aminah Hafidzatullah and Sime Darby Property Datuk Seri Azmir Merican at the launch of Minggu Seri-Ibu Kraf CIMB. - Photo courtesy of CIMB
CIMB launches Minggu Seri-Ibu Kraf to support SMEs and preserve Malaysian craft
People take pictures with cherry blossom trees at Ueno park during a rainy day in Tokyo on March 12, 2025. - (Photo by PHILIP FONG / AFP)
People take pictures with cherry blossom trees at Ueno park during a rainy day in Tokyo on March 12, 2025. - (Photo by PHILIP FONG / AFP)
Mount Fuji cherry blossom festival cancelled due to overtourism
The Malaysian Anti-Corruption Commission has arrested the secretary of a non-governmental organisation over suspected abuse of power involving the alleged misappropriation of about RM4.2 million in NGO funds. - Photo: MACC
The Malaysian Anti-Corruption Commission has arrested the secretary of a non-governmental organisation over suspected abuse of power involving the alleged misappropriation of about RM4.2 million in NGO funds. - Photo: MACC
Humanitarian NGO secretary probed for abuse of power, alleged misappropriation of RM4.2...
Amniotic fluid embolism is a critical obstetric emergency that occurs when amniotic fluid, fetal cells or other debris enter the mother’s bloodstream during childbirth. - CANVA
Amniotic fluid embolism is a critical obstetric emergency that occurs when amniotic fluid, fetal cells or other debris enter the mother’s bloodstream during childbirth. - CANVA
A rare but deadly childbirth complication, what Amniotic Fluid Embolism means for mothers
Mek Jah was laid to rest at Bukit Kiara Muslim Cemetery.
Mek Jah was laid to rest at Bukit Kiara Muslim Cemetery.
Mother-in-law of Karangkraf adviser passes away
Most Popular
Restaurant allegedly washed leftover food before reselling
A nasi kandar restaurant in the district has been alleged to have washed leftover food that had already been served to customers before reusing it the following day.
A nasi kandar restaurant in the district has been alleged to have washed leftover food that had already been served to customers before reusing it the following day.
Girl injured in alleged attack, attempted abduction while walking to Rawang night market
Neighbours who noticed the commotion rushed to the scene and managed to stop the attack.
Neighbours who noticed the commotion rushed to the scene and managed to stop the attack.
Single mother found dead with slash wounds on neck
A single mother was found dead with slash wounds to her neck at a first-floor unit of Flat Sri Murni, Sungai Dua, here on Tuesday.
A single mother was found dead with slash wounds to her neck at a first-floor unit of Flat Sri Murni, Sungai Dua, here on Tuesday.
Bill Gates says he regrets 'every minute' with Epstein
Microsoft co-founder and US philanthropist Bill Gates gestures as he speaks during the World Economic Forum (WEF) annual meeting in Davos on January 21, 2026. The World Economic Forum takes place in Davos from January 19 to January 23, 2026. (Photo by Fabrice COFFRINI / AFP)
Microsoft co-founder and US philanthropist Bill Gates gestures as he speaks during the World Economic Forum (WEF) annual meeting in Davos on January 21, 2026. The World Economic Forum takes place in Davos from January 19 to January 23, 2026. (Photo by Fabrice COFFRINI / AFP)
SK Labu Besar student reports bullying case to Home Minister, Kedah police chief
A bullying case involving a student at SK Labu Besar in Kulim, Kedah has drawn the attention of senior authorities after the victim’s family raised the matter directly with the Home Minister and the Kedah police chief. - Photo: Screenshot from @misiupdate / Tiktok
A bullying case involving a student at SK Labu Besar in Kulim, Kedah has drawn the attention of senior authorities after the victim’s family raised the matter directly with the Home Minister and the Kedah police chief. - Photo: Screenshot from @misiupdate / Tiktok
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