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Tags Results for rare disease
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Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
National
Harsheetaa dies in US due to multiple organ failure, sepsis - Father
KUALA LUMPUR - Eight-year-old S. Harsheetaa Sai, who had undergone heart surgery in the United...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Vitiligo a non-contagious, harmless skin condition, says expert
KUALA LUMPUR - About seven years ago, Farah (not her real name) found some white spots appearing on...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
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Podcast
Rare Kidney Diseases: Who’s At Risk?
Rare Kidney Diseases: Who’s At Risk? While rare kidney diseases can affect anyone, some are more...
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The decision on whether to extend the contract to host the Malaysian Motorcycle Grand Prix (MotoGP) at the Sepang International Circuit (SIC), to be held at the end of this year, will be known soon. Bernama FILE PIX
The decision on whether to extend the contract to host the Malaysian Motorcycle Grand Prix (MotoGP) at the Sepang International Circuit (SIC), to be held at the end of this year, will be known soon. Bernama FILE PIX
Decision soon on contract renewal for Malaysian MotoGP to be held at SIC
In the 11.20 pm accident, 60-year-old Abdul Rahman Yusoff, who was driving a Perodua Alza car, suffered severe head injuries and died while receiving treatment at the Muadzam Shah Hospital in Rompin.
In the 11.20 pm accident, 60-year-old Abdul Rahman Yusoff, who was driving a Perodua Alza car, suffered severe head injuries and died while receiving treatment at the Muadzam Shah Hospital in Rompin.
Taxi driver killed, four hurt in Rompin three-vehicle crash
Ronaldo&#039;s move to Saudi Pro League side Al-Nassr in 2022 saw him sign for a reported annual salary of US$237 million and he has since signed a new deal which will keep him at the club until 2027. - AFP file photo
Ronaldo's move to Saudi Pro League side Al-Nassr in 2022 saw him sign for a reported annual salary of US$237 million and he has since signed a new deal which will keep him at the club until 2027. - AFP file photo
Ronaldo warned by Saudi Pro League amid transfer spending dispute
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Use of Islamic phrases by non-Muslims permitted if not insulting Islam – Federal...
Agriculture and Food Security Minister Datuk Seri Mohamad Sabu the Madani Agro Excellence Awards. Photo by Bernama
Agriculture and Food Security Minister Datuk Seri Mohamad Sabu the Madani Agro Excellence Awards. Photo by Bernama
Leave it to authorities to probe Agrobank issue – Mohammad Sabu
Most Popular
Restaurant allegedly washed leftover food before reselling
A nasi kandar restaurant in the district has been alleged to have washed leftover food that had already been served to customers before reusing it the following day.
A nasi kandar restaurant in the district has been alleged to have washed leftover food that had already been served to customers before reusing it the following day.
Girl injured in alleged attack, attempted abduction while walking to Rawang night market
Neighbours who noticed the commotion rushed to the scene and managed to stop the attack.
Neighbours who noticed the commotion rushed to the scene and managed to stop the attack.
Single mother found dead with slash wounds on neck
A single mother was found dead with slash wounds to her neck at a first-floor unit of Flat Sri Murni, Sungai Dua, here on Tuesday.
A single mother was found dead with slash wounds to her neck at a first-floor unit of Flat Sri Murni, Sungai Dua, here on Tuesday.
Bill Gates says he regrets 'every minute' with Epstein
Microsoft co-founder and US philanthropist Bill Gates gestures as he speaks during the World Economic Forum (WEF) annual meeting in Davos on January 21, 2026. The World Economic Forum takes place in Davos from January 19 to January 23, 2026. (Photo by Fabrice COFFRINI / AFP)
Microsoft co-founder and US philanthropist Bill Gates gestures as he speaks during the World Economic Forum (WEF) annual meeting in Davos on January 21, 2026. The World Economic Forum takes place in Davos from January 19 to January 23, 2026. (Photo by Fabrice COFFRINI / AFP)
SK Labu Besar student reports bullying case to Home Minister, Kedah police chief
A bullying case involving a student at SK Labu Besar in Kulim, Kedah has drawn the attention of senior authorities after the victim’s family raised the matter directly with the Home Minister and the Kedah police chief. - Photo: Screenshot from @misiupdate / Tiktok
A bullying case involving a student at SK Labu Besar in Kulim, Kedah has drawn the attention of senior authorities after the victim’s family raised the matter directly with the Home Minister and the Kedah police chief. - Photo: Screenshot from @misiupdate / Tiktok
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