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Tags Results for rare disease
Total matches: 38
Photo: Malaysian Rare Disorders Society website
Photo: Malaysian Rare Disorders Society website
HEALTH
Expand insurance, establish rare disease centres, say experts
KUALA LUMPUR - In recent years, the number of rare diseases recorded in Malaysia has been steadily...
Photo for illustration purpose only. - 123RF photo.
Photo for illustration purpose only. - 123RF photo.
HEALTH
Roberts syndrome: A rare genetic disorder
KUALA LUMPUR - A recent viral story on social media tells of a fair-skinned baby with long eyelashes...
Photo for illustration purpose only. - 123RF photo
Photo for illustration purpose only. - 123RF photo
National
Clear definition, stronger diagnostic pathways key to end ‘invisible’ rare disease patients in asean
PUTRAJAYA - Rare diseases, typically serious and often genetic conditions affecting a small number...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Experts debunk myths about Prader–Willi Syndrome as families call for stronger long-term support
SHAH ALAM – A common myth about Prader–Willi Syndrome (PWS) is that those living with it are...
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
Individuals living with PWS, Mike, Nagheendran and Ken, with their caregivers Azman, Maheswarie and Lantz, together with the participants of PWS Human Library, after the engaging session.
HEALTH
When hunger doesn’t stop: Raising awareness on Prader-Willi syndrome in Malaysia
In most homes, a child asking for second helpings at dinner is met with encouragement or teasing....
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HED patients in Malaysia face even greater challenges due to a lack of medical specialists to manage this incurable condition. This has led to delayed diagnoses, which in turn increases life-threatening risks. - 123RF file photo
HEALTH
Living with HED: Malaysian man battles relentless heat and stigma daily
KUALA LUMPUR - Born with the rare genetic condition Hypohidrotic Ectodermal Dysplasia (HED), Mohamad...
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
Harsheetaa, who studied at the same school where her parents teach, had been battling heterotaxy since birth. - Photo source: R. Selva Ganapathy via Bernama
National
Harsheetaa dies in US due to multiple organ failure, sepsis - Father
KUALA LUMPUR - Eight-year-old S. Harsheetaa Sai, who had undergone heart surgery in the United...
Photo for illustration purposes only.
Photo for illustration purposes only.
HEALTH
Vitiligo a non-contagious, harmless skin condition, says expert
KUALA LUMPUR - About seven years ago, Farah (not her real name) found some white spots appearing on...
Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
New
Conventional methods use pluripotent stem cells, which are the developmental "root" capable of becoming any cell type. - 123RF photo
Conventional methods use pluripotent stem cells, which are the developmental "root" capable of becoming any cell type. - 123RF photo
Chinese scientists transplant stem cell-derived islets to treat type 1 diabetes
Farid Amirul Hisham Wu Abdullah revealed the bitter reality faced by some veteran artistes in the local entertainment industry. Photo by Bernama
Farid Amirul Hisham Wu Abdullah revealed the bitter reality faced by some veteran artistes in the local entertainment industry. Photo by Bernama
RM500 for five days? Veteran actor calls out ‘unreasonable’ pay offer
Although pickleball was originally created in 1965 as a casual family game, the sport’s transition into a faster-paced style of play is now beginning to reveal a "dark side” for players who lack adequate physical preparation. Photo by Bernama
Although pickleball was originally created in 1965 as a casual family game, the sport’s transition into a faster-paced style of play is now beginning to reveal a "dark side” for players who lack adequate physical preparation. Photo by Bernama
Pickleball’s ‘dark side’: Experts warn of injury risks as sport turns faster
On March 15, Domestic Trade and Cost of Living Minister Datuk Armizan Mohd Ali stated that the HPAA will take effect on June 1, 2026, with a transition period until March 31, 2027, for banks to perform necessary systems, processes and infrastructure enhancements.
On March 15, Domestic Trade and Cost of Living Minister Datuk Armizan Mohd Ali stated that the HPAA will take effect on June 1, 2026, with a transition period until March 31, 2027, for banks to perform necessary systems, processes and infrastructure enhancements.
New hire-purchase rules to benefit borrowers, minimal impact on banks
An estimated 50 kg of hair-based compost has been produced so far. - Bernama photo
An estimated 50 kg of hair-based compost has been produced so far. - Bernama photo
Vocational college students turn hair clippings into compost
Most Popular
Muslims in Malaysia celebrate Aidilfitri on Saturday
Photo for illustration purpose only. - Bernama photo
Photo for illustration purpose only. - Bernama photo
Harimau Malaya handed 3-0 defeats to Nepal, Vietnam in Asian Cup Qualifiers
FAM said it will submit a written request to obtain the grounds of the decision from the AFC Disciplinary and Ethics Committee before considering the next course of action regarding the matter. - Bernama file photo
FAM said it will submit a written request to obtain the grounds of the decision from the AFC Disciplinary and Ethics Committee before considering the next course of action regarding the matter. - Bernama file photo
Sarawak announces additional public holiday for Aidilfitri
The Sarawak State Government has announced that an additional public holiday will be observed in conjunction with this year’s Aidilfitri celebration. - Bernama file photo
The Sarawak State Government has announced that an additional public holiday will be observed in conjunction with this year’s Aidilfitri celebration. - Bernama file photo
Hamzah rules out return to Muhyiddin camp as he asserts majority support
Hamzah Zainudin
Hamzah Zainudin
Zamri Vinoth arrives in court in handcuffs under police escort
Zamri, whose full name is Muhammad Zamri Vinoth Kalimuthu, arrived at about 9.10am clad in a blue coat after being transported in an SUV.
Zamri, whose full name is Muhammad Zamri Vinoth Kalimuthu, arrived at about 9.10am clad in a blue coat after being transported in an SUV.
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