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Tags Results for Rare Disease
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Photo for illustration purpose only. - 123RF file photo
Photo for illustration purpose only. - 123RF file photo
HEALTH
Living with myasthenia gravis, a rare but manageable condition
KUALA LUMPUR - It began suddenly in 2010 - Alina Ali started feeling inexplicably fatigued and her...
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
(from left) Azman Ahmad Bakri, 49, Farahiah Mohd Ariffin, 37, and Prader-Willi Syndrome Association of Malaysia (PWSAM) President Azhar Talib, (front) Mikhael Azman, 13, who suffers from Prader-Willi Syndrome (PWS). Photo by Bernama
National
Family shares challenges of raising child with Prader-Willi-Syndrome to raise awareness
KUALA LUMPUR - No parents are ever truly prepared to accept that their child has an incurable...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Rare Kidney Diseases: Who’s At Risk?" /><meta itemprop="description" content="Rare Kidney Diseases: Who’s At Risk?<br /><br />While rare kidney diseases can affect anyone, some are more common in certain ethnic groups. IgA nephropathy, for example, is more prevalent in Asian communities, likely due to a mix of genetics and environmental factors. <br /><br />Understanding these differences can help improve early detection and treatment.<br /><br />Learn more in the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch it now on Sinar Daily’s YouTube or visit www.sinardaily.my for the full episode.<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:47:04.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-IqW1dmOOkapwsFx/x120" /><meta itemprop="duration" content="P93S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcly8" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcly8"></script></div>
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Rare Kidney Diseases: Who’s At Risk?
Rare Kidney Diseases: Who’s At Risk? While rare kidney diseases can affect anyone, some are more...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Why Do Rare Disease Often Get Misdiagnosed?" /><meta itemprop="description" content="Why Do Rare Disease Often Get Misdiagnosed?<br /><br />Lack of awareness, limited experience, and symptoms that mimic common illnesses make rare diseases difficult to detect. <br /><br />Many patients go years without answers, seeing multiple doctors before getting the right diagnosis.<br /><br />Let’s change that. Watch the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders, now on Sinar Daily’s YouTube channel or visit www.sinardaily.my to learn more.<br /><br />WATCH FULL VIDEO: <br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:31:39.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/X-IN41dmOAo7S_sxw/x120" /><meta itemprop="duration" content="P114S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fckhw" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fckhw"></script></div>
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Why Do Rare Disease Often Get Misdiagnosed?
Why Do Rare Disease Often Get Misdiagnosed?Lack of awareness, limited experience, and symptoms that...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What Is Defined as Rare Disease?" /><meta itemprop="description" content="What Is Defined as Rare Disease?<br /><br />Rare diseases may be uncommon individually, but together, they affect over 300 million people worldwide. <br /><br />In Malaysia, there’s no official definition, but the challenges are universal—delayed diagnosis, limited treatment options, and a lack of awareness.<br /><br />This World Rare Disease Day, let’s shine a light on these often-overlooked conditions. Catch the latest Life & Style Podcast episode - <br />World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch now on Sinar Daily’s YouTube channel or visit our website.<br /><br />#RareDiseaseDay #YouAreNotAlone #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:13:18.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-I2a1dmOAXFWItYR/x120" /><meta itemprop="duration" content="P79S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcjhg" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcjhg"></script></div>
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Podcast
What Is Defined as Rare Disease?
What Is Defined as Rare Disease? Rare diseases may be uncommon individually, but together, they...
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
HEALTH
Rare Kidney Disease: The silent health crisis we need to talk about
For millions living with rare diseases, the road to diagnosis and treatment is often filled with...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE &amp; STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders<br /><br />Rare kidney diseases are often overlooked, making diagnosis and treatment a tough journey. <br /><br />In this Life & Style Podcast special for World Rare Disease Day 2025, Consultant Nephrologist at Sunway Medical Centre and Vice President of the Malaysian Society of Nephrology (MSN), Dr Rosnawati Yahya and Pediatric Nephrologist from the University of Colorado School of Medicine, United States (US), Professor Dr Bradley P Dixon share insights on the challenges patients face, the role of AI in early detection, and the urgent need for better awareness and care. <br /><br />Tune in as we break the silence on this hidden health crisis.<br /><br />#worldrarediseaseday #raredisease #lifeandstylepodcast #sinardailypodcast #rarekidneydisease" /><meta itemprop="uploadDate" content="2025-02-27T11:19:08.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/Xzxq81dm4gRrZ6Xxk/x120" /><meta itemprop="duration" content="P1934S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fal8o" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fal8o"></script></div>
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[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders
[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders Rare kidney...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?" /><meta itemprop="description" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?<br /><br />Ever heard of Atypical Hemolytic Uremic Syndrome (aHUS)? This rare but serious disease causes the immune system to attack small blood vessels, leading to dangerous blood clots and kidney damage.<br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains how aHUS mimics other illnesses making diagnosis tricky.<br /><br />Don’t miss this special episode for World Rare Disease Day! Watch the full podcast at www.sinardaily.my or on Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Healthcare #Health #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:37:54.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQV01dl28zrCmGkm/x120" /><meta itemprop="duration" content="P118S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f21mo" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f21mo"></script></div>
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What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?
What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)? Ever heard of Atypical Hemolytic Uremic...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome<br /><br />Kidney disease is often linked to lifestyle choices like diet and hydration, but for those living with a rare kidney disease like Atypical Hemolytic Uremic Syndrome (aHUS), the reality is far more complex. <br /><br />This rare and life-threatening condition can strike suddenly, causing blood clots, organ failure, and lasting health issues.<br /><br />In the latest episode of Sinar Daily’s Life & Style Podcast, leading nephrologists Prof Lim Soo Kun and Prof Dr Hermann Haller discuss the major challenges of aHUS in Malaysia—misdiagnosis, slow test results, and limited access to treatment.<br /><br />With the upcoming World Rare Disease Day 2025 focusing on "More than you can imagine: an anthology of rare experiences," this conversation highlights why early diagnosis is crucial to saving lives.<br /><br />Tune in for the full in-depth discussion. <br />/><meta itemprop="uploadDate" content="2025-02-24T04:43:42.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyOTW1dk_cHrYvMmv/x120" /><meta itemprop="duration" content="P1944S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f1v8g" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f1v8g"></script></div>
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Podcast
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic...
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
HEALTH
The silent threat of aHUS: Why Malaysia struggles with early diagnosis, treatment
For many, kidney diseases are often associated with lifestyle choices—too much salt, too little...
New
Content creator Sofea Shra represented Malaysia as the only Southeast Asian creator invited to Huda Beauty’s brand trip for its new perfume launch. - Photo: sofeashra / Instagram
Content creator Sofea Shra represented Malaysia as the only Southeast Asian creator invited to Huda Beauty’s brand trip for its new perfume launch. - Photo: sofeashra / Instagram
Huda Kattan in kebaya: Sofea Shra's styling moment is winning hearts online
Photo for illustration purposes only.
Photo for illustration purposes only.
Southeast Asia's largest dinosaur discovered in Thailand
An uninterruptible power supply (UPS) room at Sasana Kijang, Bank Negara, caught fire on Friday.
An uninterruptible power supply (UPS) room at Sasana Kijang, Bank Negara, caught fire on Friday.
UPS room at Sasana Kijang catches fire
Five Italians have died in a scuba diving accident in the Maldives, Italy&#039;s foreign ministry said on Thursday, with security forces in the Indian Ocean archipelago recovering one body. Photo for illustrative purposes only - Pixabay
Five Italians have died in a scuba diving accident in the Maldives, Italy's foreign ministry said on Thursday, with security forces in the Indian Ocean archipelago recovering one body. Photo for illustrative purposes only - Pixabay
Five Italians die in Maldives cave-diving tragedy
The rear section of the stage at SMK Putrajaya Presint 14(1) hall caught fire in an incident at around 6pm on Thursday.
The rear section of the stage at SMK Putrajaya Presint 14(1) hall caught fire in an incident at around 6pm on Thursday.
Fire breaks out backstage at SMK Putrajaya Presint 14(1)
Most Popular
Indonesia’s Chromebook procurement scandal: What you need to know
Indonesia&#039;s former education minister Nadiem Makarim attends his trial at the Corruption Court in Jakarta on Jan 12, 2026. - (Photo by BAY ISMOYO / AFP)
Indonesia's former education minister Nadiem Makarim attends his trial at the Corruption Court in Jakarta on Jan 12, 2026. - (Photo by BAY ISMOYO / AFP)
NKVE accident: Viral video shows car struck three times near Duta Toll Plaza, one arrested
A multi-vehicle accident along the New Klang Valley Expressway (NKVE) near the Duta Toll Plaza on Friday night turned chaotic after a car was struck three times within minutes, in an incident that later went viral on social media.
A multi-vehicle accident along the New Klang Valley Expressway (NKVE) near the Duta Toll Plaza on Friday night turned chaotic after a car was struck three times within minutes, in an incident that later went viral on social media.
CCTV captures repeated incidents of woman defecating in front of Seremban shop
CCTV footage at the location captured the actions of the woman, who is alleged to frequently defecate. Photo: NegeriSembilanKini
CCTV footage at the location captured the actions of the woman, who is alleged to frequently defecate. Photo: NegeriSembilanKini
Road closures near Padang Merbok tomorrow: KL motorists advised to plan alternative routes
The public is advised to plan their journeys to avoid traffic congestion during the "XTEP 10KM Time Trial 2026” running programme in the capital tomorrow. Photo for illustrative purposes only - Canva
The public is advised to plan their journeys to avoid traffic congestion during the "XTEP 10KM Time Trial 2026” running programme in the capital tomorrow. Photo for illustrative purposes only - Canva
Police hunt man who lured boy with phone package offer before confining and sexually assaulting teen in Bukit Kemuning
Police are tracking down a man believed to have confined and sexually assaulted a 14-year-old boy in an apartment in Bukit Kemuning, Section 32, here, yesterday.
Police are tracking down a man believed to have confined and sexually assaulted a 14-year-old boy in an apartment in Bukit Kemuning, Section 32, here, yesterday.
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