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Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva

The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva

SMA Type 2 Patient, Miza Marsya Roslan (centre, on a wheelchair) with UMMC’s Rare Disease Awareness event’s committees on Feb 22 at Sunway Velocity Mall.

The ordeal faced by toddler Muhammad Hariz Iman Mohd Herman, who lost his sight due to nerve cancer, caught the attention of Prime Minister Datuk Seri Anwar Ibrahim when he channeled a donation of RM10,000 to him. - Photo source: Social media

Haliza Md Kassim with her son Mohammad Irfan Zahran Mohd Adam who is suffering from Mucopolysaccharidosis Type II (MPS II) also known as Hunter Syndrome. -Photo by Bernama

Britain's main opposition Labour Party leader Keir Starmer (L), flanked by Britain's main opposition Labour Party Shadow Chancellor of the Exchequer Rachel Reeves (rear R), speaks to members of staff during a Q&A session at the end of a visit of the Airbus Defence and Space facilities, as part the Labour general election campaign, in Stevenage, north of London, on May 28, 2024. (Photo by JUSTIN TALLIS / AFP)