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<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Why Do Rare Disease Often Get Misdiagnosed?" /><meta itemprop="description" content="Why Do Rare Disease Often Get Misdiagnosed?<br /><br />Lack of awareness, limited experience, and symptoms that mimic common illnesses make rare diseases difficult to detect. <br /><br />Many patients go years without answers, seeing multiple doctors before getting the right diagnosis.<br /><br />Let’s change that. Watch the Life & Style Podcast episode, World Rare Disease Day: The reality of Rare Kidney Disorders, now on Sinar Daily’s YouTube channel or visit www.sinardaily.my to learn more.<br /><br />WATCH FULL VIDEO: <br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />#RareDiseaseDay #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:31:39.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/X-IN41dmOAo7S_sxw/x120" /><meta itemprop="duration" content="P114S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fckhw" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fckhw"></script></div>
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Why Do Rare Disease Often Get Misdiagnosed?
Why Do Rare Disease Often Get Misdiagnosed?Lack of awareness, limited experience, and symptoms that...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What Is Defined as Rare Disease?" /><meta itemprop="description" content="What Is Defined as Rare Disease?<br /><br />Rare diseases may be uncommon individually, but together, they affect over 300 million people worldwide. <br /><br />In Malaysia, there’s no official definition, but the challenges are universal—delayed diagnosis, limited treatment options, and a lack of awareness.<br /><br />This World Rare Disease Day, let’s shine a light on these often-overlooked conditions. Catch the latest Life & Style Podcast episode - <br />World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch now on Sinar Daily’s YouTube channel or visit our website.<br /><br />#RareDiseaseDay #YouAreNotAlone #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:13:18.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-I2a1dmOAXFWItYR/x120" /><meta itemprop="duration" content="P79S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcjhg" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcjhg"></script></div>
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What Is Defined as Rare Disease?
What Is Defined as Rare Disease? Rare diseases may be uncommon individually, but together, they...
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
HEALTH
Rare Kidney Disease: The silent health crisis we need to talk about
For millions living with rare diseases, the road to diagnosis and treatment is often filled with...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE &amp; STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders<br /><br />Rare kidney diseases are often overlooked, making diagnosis and treatment a tough journey. <br /><br />In this Life & Style Podcast special for World Rare Disease Day 2025, Consultant Nephrologist at Sunway Medical Centre and Vice President of the Malaysian Society of Nephrology (MSN), Dr Rosnawati Yahya and Pediatric Nephrologist from the University of Colorado School of Medicine, United States (US), Professor Dr Bradley P Dixon share insights on the challenges patients face, the role of AI in early detection, and the urgent need for better awareness and care. <br /><br />Tune in as we break the silence on this hidden health crisis.<br /><br />#worldrarediseaseday #raredisease #lifeandstylepodcast #sinardailypodcast #rarekidneydisease" /><meta itemprop="uploadDate" content="2025-02-27T11:19:08.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/Xzxq81dm4gRrZ6Xxk/x120" /><meta itemprop="duration" content="P1934S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fal8o" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fal8o"></script></div>
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[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders
[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders Rare kidney...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Challenges in diagnosing aHUS" /><meta itemprop="description" content="Challenges in diagnosing aHUS<br /><br />What are the biggest challenges in diagnosing and treating Atypical Hemolytic Uremic Syndrome (aHUS) in Malaysia? <br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains it all in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS—from delayed diagnosis to limited testing and treatment access.<br /><br />Catch the full episode now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:58:04.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/XyQlg1dl2QKUsAse7/x120" /><meta itemprop="duration" content="P127S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f22ga" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f22ga"></script></div>
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Challenges in diagnosing aHUS
Challenges in diagnosing aHUS What are the biggest challenges in diagnosing and treating Atypical...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="How does aHUS progress if left untreated?" /><meta itemprop="description" content="How does aHUS progress if left untreated?<br /><br />Early detection of Atypical Hemolytic Uremic Syndrome (aHUS) can save lives. <br /><br />Some cases progress so fast that patients can die within days, while others develop more slowly—but without quick treatment, organ damage becomes permanent.<br /><br />The challenge? Many doctors miss the signs of this rare kidney disease. The sooner it’s diagnosed, the better the chances of survival. <br /><br />Prof Dr Hermann Haller breaks it all down in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS. <br /><br />Watch now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:48:27.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQeK1dl2HXGd8Whg/x120" /><meta itemprop="duration" content="P107S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f2238" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f2238"></script></div>
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How does aHUS progress if left untreated?
How does aHUS progress if left untreated? Early detection of Atypical Hemolytic Uremic Syndrome...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?" /><meta itemprop="description" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?<br /><br />Ever heard of Atypical Hemolytic Uremic Syndrome (aHUS)? This rare but serious disease causes the immune system to attack small blood vessels, leading to dangerous blood clots and kidney damage.<br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains how aHUS mimics other illnesses making diagnosis tricky.<br /><br />Don’t miss this special episode for World Rare Disease Day! Watch the full podcast at www.sinardaily.my or on Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Healthcare #Health #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:37:54.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQV01dl28zrCmGkm/x120" /><meta itemprop="duration" content="P118S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f21mo" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f21mo"></script></div>
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What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?
What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)? Ever heard of Atypical Hemolytic Uremic...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome<br /><br />Kidney disease is often linked to lifestyle choices like diet and hydration, but for those living with a rare kidney disease like Atypical Hemolytic Uremic Syndrome (aHUS), the reality is far more complex. <br /><br />This rare and life-threatening condition can strike suddenly, causing blood clots, organ failure, and lasting health issues.<br /><br />In the latest episode of Sinar Daily’s Life & Style Podcast, leading nephrologists Prof Lim Soo Kun and Prof Dr Hermann Haller discuss the major challenges of aHUS in Malaysia—misdiagnosis, slow test results, and limited access to treatment.<br /><br />With the upcoming World Rare Disease Day 2025 focusing on "More than you can imagine: an anthology of rare experiences," this conversation highlights why early diagnosis is crucial to saving lives.<br /><br />Tune in for the full in-depth discussion. <br />/><meta itemprop="uploadDate" content="2025-02-24T04:43:42.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyOTW1dk_cHrYvMmv/x120" /><meta itemprop="duration" content="P1944S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f1v8g" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f1v8g"></script></div>
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Podcast
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic...
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
HEALTH
The silent threat of aHUS: Why Malaysia struggles with early diagnosis, treatment
For many, kidney diseases are often associated with lifestyle choices—too much salt, too little...
Cancer survivor Bazli Kezi. Photo by Bernama
Cancer survivor Bazli Kezi. Photo by Bernama
HEALTH
Li-Fraumeni syndrome: The rare genetic disorder that increases cancer risk
ON one of his visits to the hospital, cancer survivor Bazli Kezi reveals he has not gone for his...
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The driver was confirmed dead at the site. Pic courtesy of Fire Department
The driver was confirmed dead at the site. Pic courtesy of Fire Department
Driver killed after cement truck overturns at construction site
HRD Corp has suspended three senior management officers following reports by PAC, Auditor-General and MACC.
HRD Corp has suspended three senior management officers following reports by PAC, Auditor-General and MACC.
HRD Corp suspends three top executives over audit, MACC findings
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Tun M granted home leave, continues treatment at IJN
The decision on whether to extend the contract to host the Malaysian Motorcycle Grand Prix (MotoGP) at the Sepang International Circuit (SIC), to be held at the end of this year, will be known soon. Bernama FILE PIX
The decision on whether to extend the contract to host the Malaysian Motorcycle Grand Prix (MotoGP) at the Sepang International Circuit (SIC), to be held at the end of this year, will be known soon. Bernama FILE PIX
Decision soon on contract renewal for Malaysian MotoGP to be held at SIC
In the 11.20 pm accident, 60-year-old Abdul Rahman Yusoff, who was driving a Perodua Alza car, suffered severe head injuries and died while receiving treatment at the Muadzam Shah Hospital in Rompin.
In the 11.20 pm accident, 60-year-old Abdul Rahman Yusoff, who was driving a Perodua Alza car, suffered severe head injuries and died while receiving treatment at the Muadzam Shah Hospital in Rompin.
Taxi driver killed, four hurt in Rompin three-vehicle crash
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Restaurant allegedly washed leftover food before reselling
A nasi kandar restaurant in the district has been alleged to have washed leftover food that had already been served to customers before reusing it the following day.
A nasi kandar restaurant in the district has been alleged to have washed leftover food that had already been served to customers before reusing it the following day.
Girl injured in alleged attack, attempted abduction while walking to Rawang night market
Neighbours who noticed the commotion rushed to the scene and managed to stop the attack.
Neighbours who noticed the commotion rushed to the scene and managed to stop the attack.
Single mother found dead with slash wounds on neck
A single mother was found dead with slash wounds to her neck at a first-floor unit of Flat Sri Murni, Sungai Dua, here on Tuesday.
A single mother was found dead with slash wounds to her neck at a first-floor unit of Flat Sri Murni, Sungai Dua, here on Tuesday.
Bill Gates says he regrets 'every minute' with Epstein
Microsoft co-founder and US philanthropist Bill Gates gestures as he speaks during the World Economic Forum (WEF) annual meeting in Davos on January 21, 2026. The World Economic Forum takes place in Davos from January 19 to January 23, 2026. (Photo by Fabrice COFFRINI / AFP)
Microsoft co-founder and US philanthropist Bill Gates gestures as he speaks during the World Economic Forum (WEF) annual meeting in Davos on January 21, 2026. The World Economic Forum takes place in Davos from January 19 to January 23, 2026. (Photo by Fabrice COFFRINI / AFP)
SK Labu Besar student reports bullying case to Home Minister, Kedah police chief
A bullying case involving a student at SK Labu Besar in Kulim, Kedah has drawn the attention of senior authorities after the victim’s family raised the matter directly with the Home Minister and the Kedah police chief. - Photo: Screenshot from @misiupdate / Tiktok
A bullying case involving a student at SK Labu Besar in Kulim, Kedah has drawn the attention of senior authorities after the victim’s family raised the matter directly with the Home Minister and the Kedah police chief. - Photo: Screenshot from @misiupdate / Tiktok
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