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<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What Is Defined as Rare Disease?" /><meta itemprop="description" content="What Is Defined as Rare Disease?<br /><br />Rare diseases may be uncommon individually, but together, they affect over 300 million people worldwide. <br /><br />In Malaysia, there’s no official definition, but the challenges are universal—delayed diagnosis, limited treatment options, and a lack of awareness.<br /><br />This World Rare Disease Day, let’s shine a light on these often-overlooked conditions. Catch the latest Life & Style Podcast episode - <br />World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch now on Sinar Daily’s YouTube channel or visit our website.<br /><br />#RareDiseaseDay #YouAreNotAlone #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:13:18.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-I2a1dmOAXFWItYR/x120" /><meta itemprop="duration" content="P79S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcjhg" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcjhg"></script></div>
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Podcast
What Is Defined as Rare Disease?
What Is Defined as Rare Disease? Rare diseases may be uncommon individually, but together, they...
Photo for illustration purpose only. - Bernama file photo
Photo for illustration purpose only. - Bernama file photo
National
Civil society backs MMC Bill but warns of government interference
SHAH ALAM - A coalition of civil society organisations has voiced strong support for the passage of...
Mohammad Shahrin (right) and his wife, Nor Fazliana (second from left), show a photo of their child when seeking assistance recently.
Mohammad Shahrin (right) and his wife, Nor Fazliana (second from left), show a photo of their child when seeking assistance recently.
National
Two-month-old baby in urgent need of RM110,000 for life-saving heart surgery
BUKIT MERTAJAM - A two-month-old baby girl Nur Khadijah Aryana Mohammad Shahrin required public...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Challenges in diagnosing aHUS" /><meta itemprop="description" content="Challenges in diagnosing aHUS<br /><br />What are the biggest challenges in diagnosing and treating Atypical Hemolytic Uremic Syndrome (aHUS) in Malaysia? <br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains it all in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS—from delayed diagnosis to limited testing and treatment access.<br /><br />Catch the full episode now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:58:04.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/XyQlg1dl2QKUsAse7/x120" /><meta itemprop="duration" content="P127S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f22ga" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f22ga"></script></div>
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Podcast
Challenges in diagnosing aHUS
Challenges in diagnosing aHUS What are the biggest challenges in diagnosing and treating Atypical...
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
HEALTH
The silent threat of aHUS: Why Malaysia struggles with early diagnosis, treatment
For many, kidney diseases are often associated with lifestyle choices—too much salt, too little...
Falls among senior citizens are a significant yet often overlooked issue, with the WHO reporting that they cause about 684,000 deaths globally each year. Photo for illustrative purposes only - Canva
Falls among senior citizens are a significant yet often overlooked issue, with the WHO reporting that they cause about 684,000 deaths globally each year. Photo for illustrative purposes only - Canva
HEALTH
Seniors at risk: The danger of falls and how to prevent them
KUALA LUMPUR - Falls among senior citizens are a significant yet often overlooked issue, with the...
Nancy Shukri. Photo by Bernama
Nancy Shukri. Photo by Bernama
National
Total fertility rate in Malaysia has declined since 2013 - Nancy
KUALA LUMPUR - The total fertility rate (TFR) in Malaysia has been on a downward trend since 2013,...
The victory gives Inter a precious away goal as they attempt to secure their passage into the last 16 in next Tuesday&#039;s second leg in Florida. Photo by AFP
The victory gives Inter a precious away goal as they attempt to secure their passage into the last 16 in next Tuesday's second leg in Florida. Photo by AFP
Sports
Messi too hot for Sporting in sub-zero Champions Cup clash
LOS ANGELES - Lionel Messi shrugged off sub-zero temperatures to score the only goal as Inter Miami...
Young adults today are less inclined to take on the conventional responsibilities of marriage, opting instead to allocate their resources elsewhere. Photo edited in Canva
Young adults today are less inclined to take on the conventional responsibilities of marriage, opting instead to allocate their resources elsewhere. Photo edited in Canva
Features
Love, life and choices: The younger generation is doing it their way
MARRIAGE, once a non-negotiable milestone, is now just one of many options for Gen Z, who prioritiSe...
Photo for illustration purpose only. - AFP file photo
Photo for illustration purpose only. - AFP file photo
World
Two astronauts stranded on space station to touch down early
WASHINGTON - Two American astronauts who have been trapped on the International Space Station since...
New
Photo for illustration purposes only.
Photo for illustration purposes only.
What is UEC and why is it so controversial in Malaysia? Explained
Azlinda speaking during the press conference today. (SINAR PHOTO)
Azlinda speaking during the press conference today. (SINAR PHOTO)
UEC, tahfiz leavers entering IPTA to receive government subsidies via mainstream channel
Former MCA vice-president Ti Lian Ker
Former MCA vice-president Ti Lian Ker
Ti Lian Ker: UEC approval same as BN’s past offer, now weaponised to corner Perikatan...
Mohd Nor Hamzah
Mohd Nor Hamzah
UEC recognition contradicts National Policy, invites disaster for country, warns Pas...
Anuar Ahmad
Anuar Ahmad
May 15 marks the 'death' of the National Education Policy, says education expert
Most Popular
Indonesia’s Chromebook procurement scandal: What you need to know
Indonesia&#039;s former education minister Nadiem Makarim attends his trial at the Corruption Court in Jakarta on Jan 12, 2026. - (Photo by BAY ISMOYO / AFP)
Indonesia's former education minister Nadiem Makarim attends his trial at the Corruption Court in Jakarta on Jan 12, 2026. - (Photo by BAY ISMOYO / AFP)
NKVE accident: Viral video shows car struck three times near Duta Toll Plaza, one arrested
A multi-vehicle accident along the New Klang Valley Expressway (NKVE) near the Duta Toll Plaza on Friday night turned chaotic after a car was struck three times within minutes, in an incident that later went viral on social media.
A multi-vehicle accident along the New Klang Valley Expressway (NKVE) near the Duta Toll Plaza on Friday night turned chaotic after a car was struck three times within minutes, in an incident that later went viral on social media.
CCTV captures repeated incidents of woman defecating in front of Seremban shop
CCTV footage at the location captured the actions of the woman, who is alleged to frequently defecate. Photo: NegeriSembilanKini
CCTV footage at the location captured the actions of the woman, who is alleged to frequently defecate. Photo: NegeriSembilanKini
Police hunt man who lured boy with phone package offer before confining and sexually assaulting teen in Bukit Kemuning
Police are tracking down a man believed to have confined and sexually assaulted a 14-year-old boy in an apartment in Bukit Kemuning, Section 32, here, yesterday.
Police are tracking down a man believed to have confined and sexually assaulted a 14-year-old boy in an apartment in Bukit Kemuning, Section 32, here, yesterday.
‘Hutang budi dibawa mati' Pahang Tengku Mahkota cites proverb in call for fair federal treatment
The Tengku Mahkota of Pahang Tengku Hassanal Ibrahim Alam Shah Al-Sultan Abdullah has reiterated his call for careful consideration and fair treatment for the state, reaffirming that such treatment must be accorded by the federal government. Photo: Facebook/Kesultanan Pahang
The Tengku Mahkota of Pahang Tengku Hassanal Ibrahim Alam Shah Al-Sultan Abdullah has reiterated his call for careful consideration and fair treatment for the state, reaffirming that such treatment must be accorded by the federal government. Photo: Facebook/Kesultanan Pahang
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