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<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What Is Defined as Rare Disease?" /><meta itemprop="description" content="What Is Defined as Rare Disease?<br /><br />Rare diseases may be uncommon individually, but together, they affect over 300 million people worldwide. <br /><br />In Malaysia, there’s no official definition, but the challenges are universal—delayed diagnosis, limited treatment options, and a lack of awareness.<br /><br />This World Rare Disease Day, let’s shine a light on these often-overlooked conditions. Catch the latest Life & Style Podcast episode - <br />World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch now on Sinar Daily’s YouTube channel or visit our website.<br /><br />#RareDiseaseDay #YouAreNotAlone #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:13:18.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-I2a1dmOAXFWItYR/x120" /><meta itemprop="duration" content="P79S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcjhg" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcjhg"></script></div>
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What Is Defined as Rare Disease?
What Is Defined as Rare Disease? Rare diseases may be uncommon individually, but together, they...
Media organisations that will drive the 2025 World #QuranHour campaign. - Photo: Sinar/Mohd Halim Abd Wahid
Media organisations that will drive the 2025 World #QuranHour campaign. - Photo: Sinar/Mohd Halim Abd Wahid
National
Astro Oasis remains primary broadcaster for 2025 World #QuranHour, strengthening Quranic engagement
SHAH ALAM - Astro Oasis will continue to be the main broadcaster for the World #QuranHour programme,...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Challenges in diagnosing aHUS" /><meta itemprop="description" content="Challenges in diagnosing aHUS<br /><br />What are the biggest challenges in diagnosing and treating Atypical Hemolytic Uremic Syndrome (aHUS) in Malaysia? <br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains it all in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS—from delayed diagnosis to limited testing and treatment access.<br /><br />Catch the full episode now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:58:04.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/XyQlg1dl2QKUsAse7/x120" /><meta itemprop="duration" content="P127S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f22ga" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f22ga"></script></div>
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Challenges in diagnosing aHUS
Challenges in diagnosing aHUS What are the biggest challenges in diagnosing and treating Atypical...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="How does aHUS progress if left untreated?" /><meta itemprop="description" content="How does aHUS progress if left untreated?<br /><br />Early detection of Atypical Hemolytic Uremic Syndrome (aHUS) can save lives. <br /><br />Some cases progress so fast that patients can die within days, while others develop more slowly—but without quick treatment, organ damage becomes permanent.<br /><br />The challenge? Many doctors miss the signs of this rare kidney disease. The sooner it’s diagnosed, the better the chances of survival. <br /><br />Prof Dr Hermann Haller breaks it all down in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS. <br /><br />Watch now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:48:27.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQeK1dl2HXGd8Whg/x120" /><meta itemprop="duration" content="P107S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f2238" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f2238"></script></div>
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How does aHUS progress if left untreated?
How does aHUS progress if left untreated? Early detection of Atypical Hemolytic Uremic Syndrome...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?" /><meta itemprop="description" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?<br /><br />Ever heard of Atypical Hemolytic Uremic Syndrome (aHUS)? This rare but serious disease causes the immune system to attack small blood vessels, leading to dangerous blood clots and kidney damage.<br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains how aHUS mimics other illnesses making diagnosis tricky.<br /><br />Don’t miss this special episode for World Rare Disease Day! Watch the full podcast at www.sinardaily.my or on Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Healthcare #Health #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:37:54.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQV01dl28zrCmGkm/x120" /><meta itemprop="duration" content="P118S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f21mo" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f21mo"></script></div>
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Podcast
What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?
What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)? Ever heard of Atypical Hemolytic Uremic...
Tell Malaysia is a collaboration between Ellis and managing director for Southeast Asia, Alex Wong, aiming to push the company into an era of global delivery.
Tell Malaysia is a collaboration between Ellis and managing director for Southeast Asia, Alex Wong, aiming to push the company into an era of global delivery.
National
Tell expands to Southeast Asia with first Kuala Lumpur branch
KUALA LUMPUR – Leading global sports production company Tell has launched a new branch in Kuala...
Photo for illustrative purposes only. Photo: Generated by AI
Photo for illustrative purposes only. Photo: Generated by AI
National
Report shows AI, social media and digital ad spend on the rise in 2025
KUALA LUMPUR - Meltwater, a global leader in media, social, and consumer intelligence, in...
Kim Ga Young (left) and the late Oh Yoanna. Photos: X
Kim Ga Young (left) and the late Oh Yoanna. Photos: X
Deep Dive
South Korean weathercaster resigns amid workplace bullying allegations following colleague’s suicide
SHAH ALAM - MBC weathercaster Kim Ga-young has resigned from her broadcasting role following...
IKEA is making home shopping even more convenient for customers in Sabah and Sarawak with the launch of its dedicated e-commerce platform on Feb 4.
IKEA is making home shopping even more convenient for customers in Sabah and Sarawak with the launch of its dedicated e-commerce platform on Feb 4.
LIFE
Ikea expands its reach in East Malaysia with new online store
Ikea is making home shopping even more convenient for customers in Sabah and Sarawak with the launch...
A poster depicting Israeli Prime Minister&#039;s wife Sara Netanyahu, with a slogan in Hebrew which reads &#039;investigation now&#039; is pictured, in front of the Israeli Defence Ministry in Tel Aviv. Photo by Jack GUEZ/AFP FILE PIX
A poster depicting Israeli Prime Minister's wife Sara Netanyahu, with a slogan in Hebrew which reads 'investigation now' is pictured, in front of the Israeli Defence Ministry in Tel Aviv. Photo by Jack GUEZ/AFP FILE PIX
World
Criminal probe launched into Israel PM's wife: State attorney's office
JERUSALEM - Israeli police are conducting a criminal investigation into Sara Netanyahu, the wife of...
New
Photo for illustration purposes only.
Photo for illustration purposes only.
What is UEC and why is it so controversial in Malaysia? Explained
Azlinda speaking during the press conference today. (SINAR PHOTO)
Azlinda speaking during the press conference today. (SINAR PHOTO)
UEC, tahfiz leavers entering IPTA to receive government subsidies via mainstream channel
Former MCA vice-president Ti Lian Ker
Former MCA vice-president Ti Lian Ker
Ti Lian Ker: UEC approval same as BN’s past offer, now weaponised to corner Perikatan...
Mohd Nor Hamzah
Mohd Nor Hamzah
UEC recognition contradicts National Policy, invites disaster for country, warns Pas...
Anuar Ahmad
Anuar Ahmad
May 15 marks the 'death' of the National Education Policy, says education expert
Most Popular
Indonesia’s Chromebook procurement scandal: What you need to know
Indonesia&#039;s former education minister Nadiem Makarim attends his trial at the Corruption Court in Jakarta on Jan 12, 2026. - (Photo by BAY ISMOYO / AFP)
Indonesia's former education minister Nadiem Makarim attends his trial at the Corruption Court in Jakarta on Jan 12, 2026. - (Photo by BAY ISMOYO / AFP)
NKVE accident: Viral video shows car struck three times near Duta Toll Plaza, one arrested
A multi-vehicle accident along the New Klang Valley Expressway (NKVE) near the Duta Toll Plaza on Friday night turned chaotic after a car was struck three times within minutes, in an incident that later went viral on social media.
A multi-vehicle accident along the New Klang Valley Expressway (NKVE) near the Duta Toll Plaza on Friday night turned chaotic after a car was struck three times within minutes, in an incident that later went viral on social media.
CCTV captures repeated incidents of woman defecating in front of Seremban shop
CCTV footage at the location captured the actions of the woman, who is alleged to frequently defecate. Photo: NegeriSembilanKini
CCTV footage at the location captured the actions of the woman, who is alleged to frequently defecate. Photo: NegeriSembilanKini
Police hunt man who lured boy with phone package offer before confining and sexually assaulting teen in Bukit Kemuning
Police are tracking down a man believed to have confined and sexually assaulted a 14-year-old boy in an apartment in Bukit Kemuning, Section 32, here, yesterday.
Police are tracking down a man believed to have confined and sexually assaulted a 14-year-old boy in an apartment in Bukit Kemuning, Section 32, here, yesterday.
‘Hutang budi dibawa mati' Pahang Tengku Mahkota cites proverb in call for fair federal treatment
The Tengku Mahkota of Pahang Tengku Hassanal Ibrahim Alam Shah Al-Sultan Abdullah has reiterated his call for careful consideration and fair treatment for the state, reaffirming that such treatment must be accorded by the federal government. Photo: Facebook/Kesultanan Pahang
The Tengku Mahkota of Pahang Tengku Hassanal Ibrahim Alam Shah Al-Sultan Abdullah has reiterated his call for careful consideration and fair treatment for the state, reaffirming that such treatment must be accorded by the federal government. Photo: Facebook/Kesultanan Pahang
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