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<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What Is Defined as Rare Disease?" /><meta itemprop="description" content="What Is Defined as Rare Disease?<br /><br />Rare diseases may be uncommon individually, but together, they affect over 300 million people worldwide. <br /><br />In Malaysia, there’s no official definition, but the challenges are universal—delayed diagnosis, limited treatment options, and a lack of awareness.<br /><br />This World Rare Disease Day, let’s shine a light on these often-overlooked conditions. Catch the latest Life & Style Podcast episode - <br />World Rare Disease Day: The reality of Rare Kidney Disorders. <br /><br />WATCH FULL VIDEO:<br />YOUTUBE:<br />https://www.youtube.com/watch?v=Z0muKQ2O6ns<br /><br />FACEBOOK: https://www.facebook.com/sinardaily/videos/1721091405108964<br /><br />Watch now on Sinar Daily’s YouTube channel or visit our website.<br /><br />#RareDiseaseDay #YouAreNotAlone #LifeAndStylePodcast #WorldRareDiseaseDay #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-28T09:13:18.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/X-I2a1dmOAXFWItYR/x120" /><meta itemprop="duration" content="P79S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fcjhg" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fcjhg"></script></div>
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What Is Defined as Rare Disease?
What Is Defined as Rare Disease? Rare diseases may be uncommon individually, but together, they...
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
HEALTH
Rare Kidney Disease: The silent health crisis we need to talk about
For millions living with rare diseases, the road to diagnosis and treatment is often filled with...
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
HEALTH
The silent threat of aHUS: Why Malaysia struggles with early diagnosis, treatment
For many, kidney diseases are often associated with lifestyle choices—too much salt, too little...
SMA Type 2 Patient, Miza Marsya Roslan (centre, on a wheelchair) with UMMC’s Rare Disease Awareness event’s committees on Feb 22 at Sunway Velocity Mall.
SMA Type 2 Patient, Miza Marsya Roslan (centre, on a wheelchair) with UMMC’s Rare Disease Awareness event’s committees on Feb 22 at Sunway Velocity Mall.
National
Shedding light on Rare Diseases: UMMC brings awareness to the public
KUALA LUMPUR – In an effort to raise awareness and educate Malaysians on the challenges faced by...
The ordeal faced by toddler Muhammad Hariz Iman Mohd Herman, who lost his sight due to nerve cancer, caught the attention of Prime Minister Datuk Seri Anwar Ibrahim when he channeled a donation of RM10,000 to him. - Photo source: Social media
The ordeal faced by toddler Muhammad Hariz Iman Mohd Herman, who lost his sight due to nerve cancer, caught the attention of Prime Minister Datuk Seri Anwar Ibrahim when he channeled a donation of RM10,000 to him. - Photo source: Social media
National
Cancer-stricken toddler receives donation from PM
KUALA LUMPUR - The ordeal faced by toddler Muhammad Hariz Iman Mohd Herman, who lost his sight due...
Photo shows vials of the drug Opdivo. - Ono Pharmaceutical Co.
Photo shows vials of the drug Opdivo. - Ono Pharmaceutical Co.
World
Life-saving cancer drug a boon for patients, but its price prompts debate
TOKYO - Nivolumab, an immune checkpoint inhibitor praised for its groundbreaking approach to cancer...
Unfortunately, there is no database that can give accurate numbers for the disease in Malaysia.
Unfortunately, there is no database that can give accurate numbers for the disease in Malaysia.
HEALTH
Neurofibromatosis: Learn the symptoms of this genetic condition
Neurofibromatosis is a rare disease with the estimation of around one in 3,000 people living with...
Illustrative purposes. (123rf)
Illustrative purposes. (123rf)
LETTERS
Early diagnosis makes a difference for Pompe Patients in Malaysia
Pompe disease, a rare and often misunderstood condition, casts a shadow over the lives of its few...
The Kuala Lumpur Hospital&#039;s Department of Genetics reported that as of January last year, a total of 13,036 children with rare diseases had been treated at facilities under the Ministry of Health. Photo for illustrative purposes only - 123RF
The Kuala Lumpur Hospital's Department of Genetics reported that as of January last year, a total of 13,036 children with rare diseases had been treated at facilities under the Ministry of Health. Photo for illustrative purposes only - 123RF
National
Over 13,000 children with rare diseases treated at MOH facilities
KUALA LUMPUR - The Kuala Lumpur Hospital's Department of Genetics reported that as of January...
Dr Nurul Izzaty Hassan with her son Ahmad Qayyim Ahmad Ezhan and husband Ahmad Ezhan Mohd Mokhtar and their daughter, Abeer Jannah Ahmad Ezhan.
Dr Nurul Izzaty Hassan with her son Ahmad Qayyim Ahmad Ezhan and husband Ahmad Ezhan Mohd Mokhtar and their daughter, Abeer Jannah Ahmad Ezhan.
HEALTH
The unexpected journey of raising a child with Neurofibromatosis
Amidst the fragile moments of motherhood, life took its twists and turns for Dr Nurul Izzaty...
New
Photo for illustration purposes only.
Photo for illustration purposes only.
Malaysia risks raising AI-savvy generation lacking critical thinking skills - Expert
A general view shows private and public residential high-rise buildings in Singapore on Feb 27, 2026. - (Photo by ROSLAN RAHMAN / AFP)
A general view shows private and public residential high-rise buildings in Singapore on Feb 27, 2026. - (Photo by ROSLAN RAHMAN / AFP)
Singapore workers among world's most active AI users: Report
Social activist Tan Sri Lee Lam Thye - BERNAMA FILE PIX
Social activist Tan Sri Lee Lam Thye - BERNAMA FILE PIX
Protecting e-hailing drivers must be a national priority - Lee Lam Thye
Anne Hathaway has announced she is pregnant, sharing the news in an Instagram video while wearing a flowing white dress and showing off her baby bump. Photo: Instagram/ @annehathaway
Anne Hathaway has announced she is pregnant, sharing the news in an Instagram video while wearing a flowing white dress and showing off her baby bump. Photo: Instagram/ @annehathaway
Anne Hathaway announces pregnancy with third child
Yoga is no longer associated with chanting or ancient rituals, but is instead seen as a way to improve movement, practise mindful breathing and become more present in daily life. - Photo by Canva
Yoga is no longer associated with chanting or ancient rituals, but is instead seen as a way to improve movement, practise mindful breathing and become more present in daily life. - Photo by Canva
Faith intact: Yoga and mindfulness without compromising beliefs
Most Popular
Rohingya activist draws backlash after Australia speech criticising Malaysia
A former Rohingya refugee turned activist has faced criticism from Malaysian social media users after remarks made during an awards speech in Australia, in which she highlighted Malaysia’s treatment of Rohingya children, went viral online. Screenshots from Noor Azizah&#039;s Instagram video
A former Rohingya refugee turned activist has faced criticism from Malaysian social media users after remarks made during an awards speech in Australia, in which she highlighted Malaysia’s treatment of Rohingya children, went viral online. Screenshots from Noor Azizah's Instagram video
Mama made it: When a manuscript comes home
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Pas trying to consolidate grip on Perikatan Nasional, says Tun Faisal
Bersatu information chief Datuk Tun Faisal Ismail Azizhas accused Pas of attempting to consolidate its grip on Perikatan Nasional (PN) by increasing its representation in the coalition&#039;s top decision-making body while reducing Bersatu&#039;s influence. FILE PIX
Bersatu information chief Datuk Tun Faisal Ismail Azizhas accused Pas of attempting to consolidate its grip on Perikatan Nasional (PN) by increasing its representation in the coalition's top decision-making body while reducing Bersatu's influence. FILE PIX
Bersatu on the brink of collapse as Muhyiddin fails to manage Pas conflict, says Wan Ahmad Fayhsal
Bersatu is on the brink of collapse due to party president Tan Sri Muhyiddin Yassin’s failure to manage the internal conflict with Pas, according to Machang member of parliament Wan Ahmad Fayhsal Wan Ahmad Kamal.
Bersatu is on the brink of collapse due to party president Tan Sri Muhyiddin Yassin’s failure to manage the internal conflict with Pas, according to Machang member of parliament Wan Ahmad Fayhsal Wan Ahmad Kamal.
Nancy Shukri's husband passes away
The passing of Datuk Kamil Misuari was announced by the Ministry of Women, Family and Community Development (KPWKM) minister&#039;s office in a media statement.
The passing of Datuk Kamil Misuari was announced by the Ministry of Women, Family and Community Development (KPWKM) minister's office in a media statement.
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