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Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
Living with a rare kidney disease means facing uncertainty at every turn. Photo: Edited Via Canva
HEALTH
Rare Kidney Disease: The silent health crisis we need to talk about
For millions living with rare diseases, the road to diagnosis and treatment is often filled with...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE &amp; STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders<br /><br />Rare kidney diseases are often overlooked, making diagnosis and treatment a tough journey. <br /><br />In this Life & Style Podcast special for World Rare Disease Day 2025, Consultant Nephrologist at Sunway Medical Centre and Vice President of the Malaysian Society of Nephrology (MSN), Dr Rosnawati Yahya and Pediatric Nephrologist from the University of Colorado School of Medicine, United States (US), Professor Dr Bradley P Dixon share insights on the challenges patients face, the role of AI in early detection, and the urgent need for better awareness and care. <br /><br />Tune in as we break the silence on this hidden health crisis.<br /><br />#worldrarediseaseday #raredisease #lifeandstylepodcast #sinardailypodcast #rarekidneydisease" /><meta itemprop="uploadDate" content="2025-02-27T11:19:08.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/Xzxq81dm4gRrZ6Xxk/x120" /><meta itemprop="duration" content="P1934S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9fal8o" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9fal8o"></script></div>
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Podcast
[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders
[LIFE & STYLE PODCAST] World Rare Disease Day: The Reality of Rare Kidney Disorders Rare kidney...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="Challenges in diagnosing aHUS" /><meta itemprop="description" content="Challenges in diagnosing aHUS<br /><br />What are the biggest challenges in diagnosing and treating Atypical Hemolytic Uremic Syndrome (aHUS) in Malaysia? <br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains it all in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS—from delayed diagnosis to limited testing and treatment access.<br /><br />Catch the full episode now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:58:04.000Z" /><meta itemprop="thumbnailUrl" content="https://s1.dmcdn.net/v/XyQlg1dl2QKUsAse7/x120" /><meta itemprop="duration" content="P127S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f22ga" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f22ga"></script></div>
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Challenges in diagnosing aHUS
Challenges in diagnosing aHUS What are the biggest challenges in diagnosing and treating Atypical...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="How does aHUS progress if left untreated?" /><meta itemprop="description" content="How does aHUS progress if left untreated?<br /><br />Early detection of Atypical Hemolytic Uremic Syndrome (aHUS) can save lives. <br /><br />Some cases progress so fast that patients can die within days, while others develop more slowly—but without quick treatment, organ damage becomes permanent.<br /><br />The challenge? Many doctors miss the signs of this rare kidney disease. The sooner it’s diagnosed, the better the chances of survival. <br /><br />Prof Dr Hermann Haller breaks it all down in the latest Life & Style Podcast, where we dive into rare kidney diseases, focusing on aHUS. <br /><br />Watch now on www.sinardaily.my or Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Health #Healthcare #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:48:27.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQeK1dl2HXGd8Whg/x120" /><meta itemprop="duration" content="P107S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f2238" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f2238"></script></div>
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How does aHUS progress if left untreated?
How does aHUS progress if left untreated? Early detection of Atypical Hemolytic Uremic Syndrome...
Photo for illustrative purposes only. Photo: Canva
Photo for illustrative purposes only. Photo: Canva
LIFE
Walking into the future: Why car-free living is on the rise
Let’s face it: Gen Z is not the generation to follow old-school norms.They are all about...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?" /><meta itemprop="description" content="What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?<br /><br />Ever heard of Atypical Hemolytic Uremic Syndrome (aHUS)? This rare but serious disease causes the immune system to attack small blood vessels, leading to dangerous blood clots and kidney damage.<br /><br />Consultant Nephrologist & MSN President, Prof Lim Soo Kun explains how aHUS mimics other illnesses making diagnosis tricky.<br /><br />Don’t miss this special episode for World Rare Disease Day! Watch the full podcast at www.sinardaily.my or on Sinar Daily’s YouTube channel. <br /><br />#RareDisease #AHUS #Healthcare #Health #SinarDailyPodcast #Life&StylePodcast #SinarDaily" /><meta itemprop="uploadDate" content="2025-02-24T07:37:54.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyQV01dl28zrCmGkm/x120" /><meta itemprop="duration" content="P118S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f21mo" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f21mo"></script></div>
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What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)?
What exactly is Atypical Hemolytic Uremic Syndrome (aHUS)? Ever heard of Atypical Hemolytic Uremic...
<div itemscope itemtype="https://schema.org/VideoObject"><meta itemprop="name" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome" /><meta itemprop="description" content="[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome<br /><br />Kidney disease is often linked to lifestyle choices like diet and hydration, but for those living with a rare kidney disease like Atypical Hemolytic Uremic Syndrome (aHUS), the reality is far more complex. <br /><br />This rare and life-threatening condition can strike suddenly, causing blood clots, organ failure, and lasting health issues.<br /><br />In the latest episode of Sinar Daily’s Life & Style Podcast, leading nephrologists Prof Lim Soo Kun and Prof Dr Hermann Haller discuss the major challenges of aHUS in Malaysia—misdiagnosis, slow test results, and limited access to treatment.<br /><br />With the upcoming World Rare Disease Day 2025 focusing on "More than you can imagine: an anthology of rare experiences," this conversation highlights why early diagnosis is crucial to saving lives.<br /><br />Tune in for the full in-depth discussion. <br />/><meta itemprop="uploadDate" content="2025-02-24T04:43:42.000Z" /><meta itemprop="thumbnailUrl" content="https://s2.dmcdn.net/v/XyOTW1dk_cHrYvMmv/x120" /><meta itemprop="duration" content="P1944S" /><meta itemprop="embedUrl" content="https://geo.dailymotion.com/player/xlcbf.html?video=x9f1v8g" /><script src="https://geo.dailymotion.com/player/xlcbf.js" data-video="x9f1v8g"></script></div>
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[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic Syndrome
[LIFE & STYLE PODCAST] Rare Kidney Disease: Shedding Light on Atypical Hemolytic Uremic...
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
The challenges in diagnosing and treating aHUS are immense, making awareness and early intervention critical. Photo: Edited via Canva
HEALTH
The silent threat of aHUS: Why Malaysia struggles with early diagnosis, treatment
For many, kidney diseases are often associated with lifestyle choices—too much salt, too little...
Photo for illustration purpose only. - File photo
Photo for illustration purpose only. - File photo
National
Media must stop stigmatising persons with disabilities, say rights groups
SHAH ALAM – Irresponsible media reporting and biased journalism contribute to harmful stereotypes,...
Local entrepreneur Asyraf Khalid offered a different perspective, arguing that mindset and access to technology play a crucial role in overcoming barriers. - Photo by Sinar
Local entrepreneur Asyraf Khalid offered a different perspective, arguing that mindset and access to technology play a crucial role in overcoming barriers. - Photo by Sinar
National
All you need to do is change your mentality to succeed, says Asyraf Khalid
SHAH ALAM - "Everyone needs to change their mentality to succeed." These were the words of local...
New
A United Nations agency is calling on countries to urgently reduce emissions, phase out fossil fuels, and accelerate the shift to renewable energy to protect children worldwide. - Photo: Unicef website
A United Nations agency is calling on countries to urgently reduce emissions, phase out fossil fuels, and accelerate the shift to renewable energy to protect children worldwide. - Photo: Unicef website
Extreme weather hits children hard, Unicef calls for urgent phasing out of fossil fuels
Organised by KLGCC Mall in collaboration with Morph KL and Sime Darby, the event took place from 10am to noon at Level One of the mall on June 20. - PHOTO SINAR HARIAN/ ASRIL ASWANDI SHUKOR.
Organised by KLGCC Mall in collaboration with Morph KL and Sime Darby, the event took place from 10am to noon at Level One of the mall on June 20. - PHOTO SINAR HARIAN/ ASRIL ASWANDI SHUKOR.
Dads ditch screens for sweat and smiles at ‘Project Strong: Daddy Rocks’ challenge
Bersatu vice-president Datuk Seri Ahmad Faizal Azumu has taken a swipe at a party that ended ties with its political ally but still wants to remain in the same &#039;house.&#039;
Bersatu vice-president Datuk Seri Ahmad Faizal Azumu has taken a swipe at a party that ended ties with its political ally but still wants to remain in the same 'house.'
'You divorced us, now you want the house too?' – Peja mocks Pas
Police have sealed off five zones within disaster-affected areas in Bercham and restricted movement in and out to prevent theft or house break-ins. Photo by Bernama
Police have sealed off five zones within disaster-affected areas in Bercham and restricted movement in and out to prevent theft or house break-ins. Photo by Bernama
Police seal off storm-hit areas in Bercham, movement restricted
A woman walks past an advertisement for South Korean skincare brand Mamonde in front of a beauty store. (AFP photo)
A woman walks past an advertisement for South Korean skincare brand Mamonde in front of a beauty store. (AFP photo)
Indie brands and TikTok virality spark massive second global K-beauty boom
Most Popular
Rohingya activist draws backlash after Australia speech criticising Malaysia
A former Rohingya refugee turned activist has faced criticism from Malaysian social media users after remarks made during an awards speech in Australia, in which she highlighted Malaysia’s treatment of Rohingya children, went viral online. Screenshots from Noor Azizah&#039;s Instagram video
A former Rohingya refugee turned activist has faced criticism from Malaysian social media users after remarks made during an awards speech in Australia, in which she highlighted Malaysia’s treatment of Rohingya children, went viral online. Screenshots from Noor Azizah's Instagram video
Mama made it: When a manuscript comes home
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Pas trying to consolidate grip on Perikatan Nasional, says Tun Faisal
Bersatu information chief Datuk Tun Faisal Ismail Azizhas accused Pas of attempting to consolidate its grip on Perikatan Nasional (PN) by increasing its representation in the coalition&#039;s top decision-making body while reducing Bersatu&#039;s influence. FILE PIX
Bersatu information chief Datuk Tun Faisal Ismail Azizhas accused Pas of attempting to consolidate its grip on Perikatan Nasional (PN) by increasing its representation in the coalition's top decision-making body while reducing Bersatu's influence. FILE PIX
Bersatu on the brink of collapse as Muhyiddin fails to manage Pas conflict, says Wan Ahmad Fayhsal
Bersatu is on the brink of collapse due to party president Tan Sri Muhyiddin Yassin’s failure to manage the internal conflict with Pas, according to Machang member of parliament Wan Ahmad Fayhsal Wan Ahmad Kamal.
Bersatu is on the brink of collapse due to party president Tan Sri Muhyiddin Yassin’s failure to manage the internal conflict with Pas, according to Machang member of parliament Wan Ahmad Fayhsal Wan Ahmad Kamal.
Selangor rolls out RM209m economic shield to combat layoffs, supply crisis
Menteri Besar Amirudin Shari unveils 15 new initiatives under Phase 2 of the Selangor Resilience Strengthening Package, offering rent cuts, interest-free loans, and AI training. (BERNAMA photo)
Menteri Besar Amirudin Shari unveils 15 new initiatives under Phase 2 of the Selangor Resilience Strengthening Package, offering rent cuts, interest-free loans, and AI training. (BERNAMA photo)
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